Tysabri

Last Update May 25, 2016
Tysabri is a multiple sclerosis medication.
Uses: Tysabri is prescribed for MS and Relapse and is mostly mentioned together with these indications. Read More
Satisfaction Score
?
3.6
5 1 37744
Moderately Satisfied
based on 37,744 conversations around the web
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Last Update May 25, 2016
Satisfaction Score
?
3.6
Moderately Satisfied
based on 37,744 conversations around the web
Share your experience
Share your experience

What people say about Tysabri

Helpfulness
for MS
3.0
Concern level
1.7
Share your experience
Share your experience
Positive 3,072 "However, I would have been much harder to persuade to start Tysabri if there had been a good alternative available at the time (there wasn't) or if I was known to be JC (there was no reliable test... "Read more positive discussions
Negative 2,154 "She has just been off her Tysabri for a week and she is not feeling well at all. She wants to start on her new treatment and with all the crazy ***** they she has to go through with her insurance... "Read more negative discussions
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We found 37,744 discussions
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WHAT TO DO
| Toshanea
I was dx with MS in 2013. I was on Rebif but that when the problem started with the walking now my doctor want me to try Tysabri so I was just see what others thought about it.

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Please Help: JCV + Been on Tysabri about 15 years, thinking of switching to Rituxan
| Natalie V
I'm 35 y/o F with RRMS. I've been on Tysabri for about 15 years or so. I was on the original study for the medication and the only time I had a major flare up is when I went off about 3 years ago. Another doctor told me it was "too dangerous" and after 4 months I was blind and in the hospital getting plasmapheresis treatments, peeing myself, and unable to walk. The moment I got out I went back on Tysabri, and I've been fine... now three years later my doctor orders a blood test and is saying my JCV index puts me at a risk of 1/125 for PML. She's urging me to switch, but an MS specialist recently told me that the whole JCV index test is not even FDA approved and could be meaningless junk science. Do I switch, do I stay? I feel amazing on Tysabri, it's been almost 15 years.. but is each infusion like Russian Roulette with my life? Is there anyone who has been on Tysabri as long as I have?

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| free2bamy2010
I have been on Tysabri for some time now. It's been good for me - I always have a 1 day of down time. I feel totally drained. That is fine, something I can live with. I recently started Saxenda - I have developed or I should say the tremors I had which were minimal have now become near ridiculous.

Have anyone else out there been thru something similar?

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| Nikki_1
I just had my first infusion 2 days ago. So far, so good. I had a very achy leg last night. I am unclear if that is due to the infusion or a painful lower back situation I have going in. I was really nervous about the infusion and it was very easy and uneventful. Just the way I was hoping it would be.
September 17, 2015
I had the achy legs too after my 1st infusion. they said it was normal
Nikki_11
August 9, 2015
I should have mentioned I have had ms for 10 years i am 44. Have used copaxone in past for three years.

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URI/Sinus Infection
| Lalaw
I was diagnosed with MS in Sept of 98 and began Copaxone therapy in April 99 after the birth of my son. I continued with this treatment for 13 years at which time my Neurologist suggested Tysabri to which
I started and was taking up until Dec 12, 2014. I got sick on Jan. 2nd 2015 with chills, fever, body aches what I took to be the flu. Since that date I have been on 4 antibiotics and have had continuing Upper Respiratory Infection, Sinus Infections. It is now May 16, 2015 and I still have not been able to return for my Tysabri Infusion due to recurring infections. I saw an allergist and am happy to say I have no allergies but somewhat disappointed. Not that I want allergies, just that I would love an explanation of what is going on with me? At least then I would know something. My dilemma the Allergist said if I could give you Steroids I would load you up and that would take care of this thing. But on Tysabri my understanding is no Steroids. So can any one tell me if they know since I've been off the Tysabri since Dec can you take steroids for infections.
June 7, 2015
I've been on Tysabri going on seven years and have used steroids for my (much milder) attacks during that period.

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Facts about Tysabri

C Pregnancy category (FDA)
Before taking Tysabri during pregnancy, consult your doctor or pharmacists to weigh the risks and benefits.
ViewClose all pregnancy categories
ALL PREGNANCY CATEGORIES
a b c d x n
Category A
Adequate and well-controllted studies have failed to demonstrate a risk to the fetus in the first trimester of pregnancy (and there is no evidence of risk in later trimesters).
Category B
Animal reproduction studies have failed to demonstrate a risk to the fetus and there are no adequate and well-controlled studies in pregnant women.
Category C
Animal reproduction studies have shown an adverse effect on the fetus and there are no adequate and well-controlled studies in humans, but potential benefits may warrant use of the drug in pregnant women despite potential risks.
Category D
There is positive evidence of human fetal risk based on adverse reaction data from investigational or marketing experience or studies in humans, but potential benefits may warrant use of the drug in pregnant women despite potential risks.
Category X
Studies in animals or humans have demonstrated fetal abnormalities and/or there is positive evidence of human fetal risk based on adverse reaction data from investigational or marketing experience, and the risks involved in use of the drug in pregnant women clearly outweigh potential benefits.
Category N
FDA has not classified the drug.
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Alcohol warning on Tysabri
There may be a negative interaction between Tysabri and alcohol.
How do I obtain Tysabri?
Prescription in the USA
How do I take Tysabri?
Injection
What dosages are available?
Solution: 300 mg/15 mL
Ingredients
Natalizumab
Approval Date
November 23, 2004
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The side effects featured here are based on those most frequently appearing in user posts on the Internet. The manufacturer's product labeling should always be consulted for a list of side effects most frequently appearing in patients during clinical studies. Talk to your doctor about which medications may be most appropriate for you.
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