Where do I begin? I am a 27 year old female with a history of gluten intolerance, egg allergy and Hashimoto's Thyroiditis since 2011 (previously diagnosed with Hyperthyroidism in 2006 which later normalized for a period).
I was prescribed Levoxyl in 2011, and for over a year, I suffered from debilitating joint pain, fatigue and a muscle ache/stiffness. While these are also common symptoms of hypothyroidism, my TSH, T3, T4 levels were all normal on 88 mcg of Levoxyl daily. I started Vitamin D supplementation (for lab level <2, undetectable), which provided mild relief but the joint pain persisted.
My joint pain migrated from shoulders one minute, to knees, to wrists and ankles. My joints became EXTREMELY noisy, popping and creaking with every single movement. Even people close to me asked me what was going on!
Once Levoxyl was recalled (a blessing in disguise), I was switched to Tirosint. I was fine on Tirosint for over two years, with complete resolution of my joint/muscle complaints. As of January 1st, I found out that my health insurance plan is no longer covering Tirosint, and have been switched back to Levoxyl. Like clockwork, after one week on the Levoxyl , my joint pain has returned in full force. I am a fourth year medical student preparing to start residency in July and have no idea what I am going to do until then. In the meantime, I have a few samples of Tirosint to last me until April thankfully!
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Last Update February 11, 2016
based on 2,775 conversations around the web
What people say about Tirosint
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My Endo placed me on Tirosint 50 mcgs. Stayed on it for about 2 weeks. TSH went from 8.2 to 4.8 but by the second week I had intense burning in my stomach and severe nauseau. So much so that urgent care PA sent me to Emergency fearing a gall bladder attack - false alarm. In addition I always felt buzzed, had insomnia, and then skin started to flake off. Endo switched me to 50 mcgs of levoxyl today. Weird after years on synthroid and then levothyroxin with no effects synthroid gives me a bad reaction. My Endo won't let me go back on Generic until he exhaust all brands because my levels varied too much on the Sandoz Generic
Significant hair loss on Tirosint.
I was sick for a while and my family MD tried to mess with my thyroid numbers. I ended up asking for a full blood test. I had calcium in my blood, not good. I had a para thyroid tumor, during surgery the ENT found cancer all over my deformed thyroid and had spread to lymph nodes. After surgery I felt great until I had radiation and felt bed since. 2 Weeks ago I saw my ENDO who said he should lower my 188 dose of Tirosint but was afraid I could not handle it due to my P450 issues. I am allergic to Synthroid. So he left me on it and I kept getting worse. I had ALL symptoms of being over dosed. I also am losing half my hair. I have been on Tirosint for about two years. I was going nutty, to the point of want to commit suicide. My family MD took me off for a week, I am still off of it, and I FEEL SO MUCH BETTER. I also had a DNA test last week and I see a new ENDO this Wed. I hope I can return to LIFE once again. I have been nearly in bed for four years due to the para thyroid tumor and the thyroid cancer, then the radiation, then allergy, and over dosed (we think). My RN has her thyroid and is on 137 of Tirosint and has lost half her hair too. This is not good. I want my thick hair back. I want to feel like a HUMAN again. I know I cannot stay off the thyroid medication since I have no thyroid. But man, why is it so hard to deal with it? It totally can ruin your life if not watched and handled well.
just prescribed tirosint for my hypothyroidism...
" my endocrinologist just prescribed tirosint for my hypothyroidism -- it's liquid form and doesn't have any fillers also -- i... "
do take Tirosint for thyroid issues. I have sleep apnea....
" I do take Tirosint for thyroid issues. I have sleep apnea. I have dieted till I am blue in the face and I... "
me 2 month supply of Tirosint and I felt 100% better. I...
" \"I have had Hashimoto's since I was in ...skin, hair, and nails. My doctor gave me 2 month supply of Tirosint and I felt 100% better. I am now switching to... "
ith that they put me on tirosint. My endocrinologist upped m...
" Congrats! I dot have hashimotos (although tested a bunch ...of times because I have celiac) but consistently had a ...even with that they put me on tirosint. My endocrinologist upped... "
am currently on 13 mcg of Tirosint (just started...
" ...related to hypothyroid.....I am currently on 13 mcg of Tirosint (just started 4-5 weeks ago) and should be getting my labs again soon but I am feeling a little \"hypo\". I have never had frequent... "
Compare Tirosint to other medications
Taken for: Hypothyroidism, Hashimoto's Disease, Hyperthyroidism, Thyroid Problem, Graves
Other names: Synthroid, Levothyroxine, Levoxyl, Levothroid, Unithroid
Method of use: Pill
Prescribing mode: Rx
Facts about TirosintTirosint insert
What does Tirosint treat?
How do I obtain Tirosint?Prescription in the USA
How do I take Tirosint?Pill
What dosages are available?
13mcg, 25mcg, 50mcg, 75mcg, 88mcg, 100mcg, 112mcg, 125mcg, 137mcg, 150mcg
Food instructionsTalk to your doctor about fiber consumption as it may decrease the drug's absorption., Talk to your doctor about soy consumption as it may decrease the absorption of the drug., Talk to your doctor about coffee consumption as it may affect the drug's absorption.
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Treato does not review third-party posts for accuracy of any kind, including for medical diagnosis or treatments, or events in general. Treato does not provide medical advice, diagnosis or treatment. Usage of the website does not substitute professional medical advice.
The side effects featured here are based on those most frequently appearing in user posts on the Internet. The manufacturer's product labeling should always consulted for a list of side effects most frequently appearing in patients during clinical studies. Talk to your doctor about which medications may be most appropriate for you.