Remicade

Last Update February 11, 2016
Infliximab (International Nonproprietary Name trade name Remicade) is a monoclonal antibody against tumour necrosis factor alph...
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2.9
5 1 124220
Moderately Satisfied
based on 124,220 conversations around the web
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Last Update February 11, 2016
Satisfaction Score
?
2.9
Moderately Satisfied
based on 124,220 conversations around the web
Share your experience
Share your experience

What people say about Remicade

Helpfulness
for Crohn's Disease
4.2
Concern level
3.2
Share your experience
Share your experience
Positive 12,999 "Blooddrama, I have been on Remicade for 7 weeks, and I'm slowly getting better. Hope it works... "Read more positive discussions
Negative 6,652 "...flares are constant. Her doctor just took her off the Remicade treatments because it wasn't working and can have long term effects. Not too many... "Read more negative discussions
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seizure from saline flush
| crohns-mom
my daughter experienced a seizure during the flush before her first Remicade treatment. She finally came out of it, and the medical staff passed it off as her passing out. I have never seen anyone pass out like that before... arched back and eyes rolling back... slightly shaking... I am frightened to take her back. Do these lessen the more flushes?

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| Raymond_1
Remade has been a life saver for me. My arthritis got so bad that I could barely walk. Within 24 hrs of my first infusion I could run. I could not believe the transformation. It never stopped my Arthritis but it sure helped control it and made my life much more livable.

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| Jessiemont
I've had Crohn's Disease for a long time now and have recently been hospitalized four times within 5 months for severe pain. It took doctors 5 months later to determine that I have Gastroparesis. I didn't know if Remicade can cause this.

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My Remicaide Infusions
| Babycakes
I have only experienced a loss of appetite. It is not severe. Also, for the 1st two dats after infusion, I have a string metal taste in my mouth.

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I believe Remicade killed my dad.
| Mel
My dad has been treated for a couple years with Remicade treatments for Crohn's disease, Colitis and Ankylosing Spondylosis. He was hospitalized 4 months ago with micro perforations in his colon and A-fibrulation for which the hospital treated his severe sepsis with IV antibiotics, liquid diet and ICU for 6 days plus 4 more in the regular floor. Because he was the worlds worst patient, he was probably pushed along a bit sooner than a normal patient however the GI doc at the hospital (not his normal prescribing Dr) "said it was likely the Remicade was the cause" of the perforations.

Less than 2.5 months later he was feeling extreme pain again however in another location. One other note, my parents were snow birds and his normal doctors were up north and the first hospitalization happened in Florida. The care given to him was top notch though he might have disagreed. Again back to the present, he was feeling extreme pain again though in a completely different location. He refused to go to seek medical care due to the fact he was traveling between his two homes. Sadly, he vomitted blood and that finally scared him to call 911. Thus, the barrage of tests began and 6 hours of Hell in the ER. CT, Xray, UltraSounds, blood tests, etc...he was in so much pain that ultimately he probably couldn't take it anymore and his heart stopped. His death certificate said he died of severe sepsis, spontaneous perforated bowels, cardiac event, kidney failure and more. He was 73 years old.

I am certain he was never informed that Remicade could in fact damage the colon in this way. Most people feel the benefits far outweigh the negative side effects and probably are never given this part of the side effects, as it was hard for me to find on the package insert.

Please be aware of these. I dad died far too young. While he wasn't the healthiest people, he shouldn't have died like this.

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Remicade and protein shakes
| MjH
Hello, need some help on this. Bec the idea's been worrying me for a while. Ive been taking remicade for the past 3 years bec i was diagnosed with crohns disease. Wanted to know if taking whey protein shakes along with the remicade treatments would affect the kidneys or liver in any way?.
Thanks all

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Remecaid and Cymbalta
| Pollyd
This combination has reduced some of my pain from Psoriatic Arthritis. I have had no relief from my Psoriasis.

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UC remicade
| Mickey's mind
I'm 16 year old boy and have had uc for awhile but have been getting infusion of remicade and I was wonder if anyone else is just feeling an overall lack of any kind of energy and have had random mood swings.
July 8, 2015
Usually the first two days after infusion I'm on the couch because I have no energy and just mentally can't function.

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Remicade
| LovesAmerica
Can remicade cause carpal tunnel symptoms and sciatica pain. On 9/30/14, I had a remicade infusion for psoriatic arthritis. The next day, I had excruciating pain and numbness in both wrist and all 10 fingers just like to carpal tunnel, which I have never had. I called my doctor, but I was in such pain I could not drive, so he prescribed Tramadol which I just finished taking today with no relief. I have an appt. with him on 10/21/14, then just today, I started having sciatica pain down my left leg which I did have surgery for in 2008.

Can someone please get back to me with an answer.

Thank you

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BE CAREFUL WITH VITAMIN D3 - IT STOPS THE EFFECTIVENESS OF REMICADE
| NRamsey
If you are on Remicade for arthritis and it stops working (i.e., you start having severe joint pain out of the blue), determine if you have started a new supplement that contains Vitamin D3. If 'yes' - STOP. You'll be better in a week or so. I experimented twice and determined - it's the Vitamin D3. Other things that have the same effect are grapefruit juice and, to a lesser extent, other citrus juices - but the effect is almost immediate with the juices - a few hours, whereas the pain from Vitamin D3 takes a few days to appear once you start the supplement. It is truly debilitating. Note; I have also had negative effects from simply eating grapefruit, oranges, some variety of strawberries and some variety of tomatoes - but not as severe as when drinking juice (because of the concentration).
harry oh
April 30, 2014
hey NRRamsey...have you ckd with your doc about stopping D3...?

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Facts about Remicade

Remicade insert
How do I obtain Remicade?
Prescription in the USA
How do I take Remicade?
Injection
What dosages are available?
100mg
Ingredients
Infliximab
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