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12,474 conversations around the web about Hemochromatosis to help you make a decision
Hemochromatosis and Porphyria
Treato found 94 discussions about Porphyria and Hemochromatosis on the web.
1.64% of the posts that mention Porphyria also mention Hemochromatosis (94 posts)
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We found 94 discussions
by a Phlebotomy which they do to treat the Hemochromatosis...
" I have Hemochromatosis & Varieagate Porphyria, so you ...with the medical community. My Porphyria Attacks, and I have ...for me to be. My attacks are triggered by a Phlebotomy which they do to treat the... "
been treating my hemochromatosis & porphyria c.t. but...
" ...Gastroenterologist,as I have little faith in my current G.I..I also have a hematolgist that's been treating my hemochromatosis & porphyria c.t. but he admits lack of current knowledge and... "
I have Hemochromatosis & VP and when they treat the HH with...
" I have Hemochromatosis & VP and when they treat the HH with a Phlebotomy it triggers the Porphyria, red urine, shortness of breath, inability to walk and... "
e interesting...I have Hemochromatosis also! I would lo...
" ...your symptoms are interesting...I have Hemochromatosis also! I would love to ...symptoms just don't match my Porphyria Dx and I've wondered if ...it might be from the Hemochromatosis. My hemotologist... "
and also had Porphyria as well). Unfortunately cursed...
" ...and pain/burning) They did diagnose me with Fibro a year ago but ...TIA or seizure activity. (My Mom died of stroke and also had Porphyria as well). Unfortunately cursed with bad genes. Porphyria and... "
/ had porphyria PCT which is a lot like hemochromatosis...
" I have / had porphyria PCT which is a lot like hemochromatosis , my porphyria was caused by the hep C but I'm not real sure about the hemo..... Have the doctors mentioned phlebotomy ? It... "
e fragile skin do to my Porphyria and Hemochromatosis.Just...
" ...OK... this is a stupid question. I have fragile skin do to my Porphyria and Hemochromatosis. Just the lightest bump of my leg on anything, like a table breaks my skin and it... "
everyone.. i have porphyria plus hemochromatosis.. but i t...
" chronic porphyria i everyone.. i have porphyria plus hemochromatosis.. but i think the 2 ...hand in hand. i suffer constant nerve pain in my arms and ...out there, that also has porphyria, and understands... "
ote: The primary treatment for hemochromatosis is ph...
" Quote: Right-- If this is hemochromatosis, we'll know soon enough, but ...haven't had repeated transfusions or porphyria. Quote: The primary treatment for hemochromatosis is phlebotomy,... "
your doctor checked you for hemochromatosis? High ferritin...
" ...and skin tearing on the hands also occur with porphyria. Has your doctor checked you for hemochromatosis? High ferritin and elevated enzymes are associated with hemochromatosi... "
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