Autophony

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Autophony is the unusually loud hearing of a person's own voice, breathing or other self-generated sounds.Possible causes:* The "Occlu...
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Last Update January 31, 2016
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Autophony and Patulous Eustachian Tube

Treato found 78 discussions about Patulous Eustachian Tube and Autophony on the web.
15.1% of the posts that mention Patulous Eustachian Tube also mention Autophony (78 posts)
Patulous Eustachian Tube
Autophony
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Help for Patulous Eustachian Tube (PET) sufferers. PET can cause sufferer to hear their own voice/heartbeat/breathing loud in their heads, they may sniff or throw head forward to stop distortion.
| Serser
After struggling for 32 years with my ears 'popping'; then being able to hear my own voice, breathing, heartbeat and footfall amplified within my own head (autophony). I have recently had a breakthrough - I have Patulous Eustachian Tube (PET). I used to sniff and throw my head forward in an attempt to close the tubes and stop the autophony, but this was only a temporary fix.
I want to raise awareness of this condition which is classed as rare but I think is under/mis-diagnosed.
Statistics say that it is even rarer for children to be diagnosed but I can assure you that I suffered with this condition when I was only 6-7 years old - I was told my eustachian tubes were blocked/dysfunctional, I was prescribed decongestants (which make PET worse) , in reality my problem has always been the opposite, my eustachian tubes have not been closing properly so causing autophony which can have an extremely negative effect on social development. I did have 'glue ear' and ear infections which probably masked the PET.
There are support networks out there for sufferers of PET, there are also medical interventions that can be performed in order to reduce autophony and increase quality of life.
Please, for those of you who have children who may be going through ear problems ask questions about their hearing distortion. As a child I found it impossible to explain the symptoms of autophony, but if someone had guided/listened to me closer and had an awareness of PET I know I would have been able to relate to the symptoms and been able to get help far sooner in my life.
If anyone has any questions or would like to be pointed in the direction for further help regarding this condition I would be happy to assist.

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hink I have patulous eustachian tubes. I feel autophony mo...
| www.disease-treatment.com
" Patulous eustachian tube treatment? Hello, I think I have patulous eustachian tubes. I feel autophony most of the time, and I'm becoming so stressful. I have gone to a lot of doctors... "

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re experiencing autophony. Initial clinical result...
| www.dailystrength.org
" ...medication for rare disorders. I had to order it from a fear foundation in Ca. Cowboy, when we feel ...bucket over our head, we are experiencing autophony. Initial clinical results were... "

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Tube? since you had autophony in the beginning? I'm...
| www.healthboards.com
" ...it possible that you have Patulous Eustachian Tube? since you had autophony in the beginning? I'm giving... "

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been suffering from Patulous Eustachian Tube/ Autophony...
| www.healthboards.com
" I have been suffering from Patulous Eustachian Tube/ Autophony for over 35 years. Does anyone know if the... "

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told I had a Patulous Eustachian Tube, I decided to rule...
| www.healthboards.com
" ...out the source of my autophony problem. After many frustrating months ...of being told I had a Patulous Eustachian Tube, I decided to rule out ...the other primary cause of autophony -- Superior Semicircular... "

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say that I have patulous Eustachian tube? Is this a symptom...
| www.medhelp.org
" ...and said that I don't have ruptured eardrum, he say that I have patulous Eustachian tube? Is this a symptom of PET? I dont have autophony, i dont hearing my own breathing. Please help me.... "

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ad the T-Tube inserted but the autophony, roaring sound w...
| www.healthboards.com
" Patulous Eustachian Tube\ I have been suffering from ...1.5 years. I have had the T-Tube inserted but the autophony, roaring sound with repiration is ...My ENT offered me Botox injection into the Eustachian... "

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ad the T-Tube inserted but the autophony, roaring sound w...
| www.healthboards.com
" Patulous Eustachian Tube I have been suffering from ...1.5 years. I have had the T-Tube inserted but the autophony, roaring sound with repiration is ...My ENT offered me Botox injection into the Eustachian... "

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not what I have. I have autophony, I can hear my voice and...
| www.healthboards.com
" ...3 years. I've been diagnosed with Eustachian Tube Dysfunction, but that's definitely not ...what I have. I have autophony, I can hear my voice ...between Eustachian Tube Dysfunction and Patulous Eustachian... "

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