Autophony

622
Discussions
Share your experience
Autophony is the unusually loud hearing of a person's own voice, breathing or other self-generated sounds.Possible causes:* The "Occlu...
Read on Wikipedia
Last Update May 17, 2016
622 conversations around the web about Autophony to help you make a decision
Share your experience

Autophony and Patulous Eustachian Tube

Treato found 79 discussions about Patulous Eustachian Tube and Autophony on the web.
14.1% of the posts that mention Patulous Eustachian Tube also mention Autophony (79 posts)
Patulous Eustachian Tube
Autophony
Read more about :
Patulous Eustachian Tube
content loaded dynamically
Filter by
Filter by
Gender
Role
Age
All
We found 79 discussions
?
Help for Patulous Eustachian Tube (PET) sufferers. PET can cause sufferer to hear their own voice/heartbeat/breathing loud in their heads, they may sniff or throw head forward to stop distortion.
| Serser
After struggling for 32 years with my ears 'popping'; then being able to hear my own voice, breathing, heartbeat and footfall amplified within my own head (autophony). I have recently had a breakthrough - I have Patulous Eustachian Tube (PET). I used to sniff and throw my head forward in an attempt to close the tubes and stop the autophony, but this was only a temporary fix.
I want to raise awareness of this condition which is classed as rare but I think is under/mis-diagnosed.
Statistics say that it is even rarer for children to be diagnosed but I can assure you that I suffered with this condition when I was only 6-7 years old - I was told my eustachian tubes were blocked/dysfunctional, I was prescribed decongestants (which make PET worse) , in reality my problem has always been the opposite, my eustachian tubes have not been closing properly so causing autophony which can have an extremely negative effect on social development. I did have 'glue ear' and ear infections which probably masked the PET.
There are support networks out there for sufferers of PET, there are also medical interventions that can be performed in order to reduce autophony and increase quality of life.
Please, for those of you who have children who may be going through ear problems ask questions about their hearing distortion. As a child I found it impossible to explain the symptoms of autophony, but if someone had guided/listened to me closer and had an awareness of PET I know I would have been able to relate to the symptoms and been able to get help far sooner in my life.
If anyone has any questions or would like to be pointed in the direction for further help regarding this condition I would be happy to assist.
April 13, 2016
I desperately need guidance in this debilitating condition. I have no support with anyone or doctors to understand this condition. I've had respiratory issues most of my life. I fear I cannot continue with this much longer. It was an in-resident who saw I had abnormal eardrum movement during breathing and said I showed all signs of PET. But instead of an audiology work up, the otolaryngologist sent me to the hospital pyschiatry ward for a 4 day analysis "to find a pyschiatric component of the hearing sensivity"! Pyschiatry knew nothing about ENT. They easily theorized symptoms to be "Depression" or "Anxiety". I consistently tell them it hurts to talk as its too loud-echo sounding. Their voices are too loud. The roaring is excruciating. Their anti-depressants make it worse by adding it's own side effects to it. And STILL no audiology since otolaryngologists claim there's examinations to look or help for it. One dr. offered myringotomy without visual inspection. I don't want to further cut my ears if they can do simpler methods to check?

Treato does not review third-party posts for accuracy of any kind, including for medical diagnosis or treatments, or events in general. Treato does not provide medical advice, diagnosis or treatment. Usage of the website does not substitute professional medical advice.
The side effects featured here are based on those most frequently appearing in user posts on the Internet. The manufacturer's product labeling should always be consulted for a list of side effects most frequently appearing in patients during clinical studies. Talk to your doctor about which medications may be most appropriate for you.
The information reflected here is dependent upon the correct functioning of our algorithm. From time-to-time, our system might experience bugs or glitches that affect the accuracy or correct application of mathematical algorithms. We will do our best to update the site if we are made aware of any malfunctioning or misapplication of these algorithms. We cannot guarantee results and occasional interruptions in updating may occur. Please continue to check the site for updated information.
Welcome back! Sign in
See what other patients are saying
First time here? Sign up!
See what other patients are saying
Forgot your password?
No problem, we can help.
Please wait...