Tysabri

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Method of use: Injection
Prescribing mode: Rx
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Tysabri for MS
32,379 conversations around the web about Tysabri to help you make a decision
We analyzed what people said about Tysabri and compared it to other MS medications
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What people say about Tysabri

Positive 2,672
Negative 1,249
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We found 32,316 discussions
Nikki_1
I just had my first infusion 2 days ago. So far, so good. I had a very achy leg last night. I am unclear if that is due to the infusion or a painful lower back situation I have going in. I was really nervous about the infusion and it was very easy and uneventful. Just the way I was hoping it would be.
Nikki_1
August 9, 2015
I should have mentioned I have had ms for 10 years i am 44. Have used copaxone in past for three years.

Lalaw
URI/Sinus Infection
I was diagnosed with MS in Sept of 98 and began Copaxone therapy in April 99 after the birth of my son. I continued with this treatment for 13 years at which time my Neurologist suggested Tysabri to which
I started and was taking up until Dec 12, 2014. I got sick on Jan. 2nd 2015 with chills, fever, body aches what I took to be the flu. Since that date I have been on 4 antibiotics and have had continuing Upper Respiratory Infection, Sinus Infections. It is now May 16, 2015 and I still have not been able to return for my Tysabri Infusion due to recurring infections. I saw an allergist and am happy to say I have no allergies but somewhat disappointed. Not that I want allergies, just that I would love an explanation of what is going on with me? At least then I would know something. My dilemma the Allergist said if I could give you Steroids I would load you up and that would take care of this thing. But on Tysabri my understanding is no Steroids. So can any one tell me if they know since I've been off the Tysabri since Dec can you take steroids for infections.
June 7, 2015
I've been on Tysabri going on seven years and have used steroids for my (much milder) attacks during that period.

www.crohnsforum.com
has Tysabri for her MS and she is doing very well. You...
" ...only have Crohns but my friend has Tysabri for her MS and she is doing very well. You will... "

www.thisisms.com
year since being on Tysabri therapy, woo hoo!All my best...
" Hi Seeva, My MS is now stable, and I have not had a relapse nor any disease progression ...over a... "

www.mssociety.org.uk
e wants me to start Tysabri. What are your experiences of t...
" Tysabri? I saw my neurologist yesterday ...I keep having relapses. He wants me to start Tysabri. What are your experiences of ...want me to... "
June 7, 2015
I consider Tysabri the only decent MS med out there (at least for me?.) Even though it can kill or leave us rutabagas, for me it staved off a fast decline with my disease outset eight years ago. Been on it almost seven years. However, it's over five hundred fifty people now who've gotten PML and the company is making it harder and harder to access the hard data, now only announcing the new cases quarterly.

www.thisisms.com
there anboby treated with Tysabri and having progressive fo...
" Tysabri and progressive MS I have ...french neuros said to me Tysabri is not for you. Is there anboby treated with Tysabri... "

www.dailystrength.org
was not supposed to be getting better. Tysabri is like the...
" ...that I was not supposed to be getting better. Tysabri is like the other MS drugs - to prevent next attack from being... "

www.drugs.com
pleased with. Will this Tysabri make me gain my weight...
" Mt Dr. wants me to start Tysabri for RRMS. I have ...pleased with. Will this Tysabri make me... "

www.medhelp.org
on tysabri and get an infusion once a month. It has kept me...
" I am on tysabri and get an infusion once a month. It has kept me relapse free for 16 months. Before tysabri i... "

www.dailystrength.org
15 DOSES OF TYSABRI no side effects. They believe the drug...
" i'VE HAD 15 DOSES OF TYSABRI no side effects. They believe the drug is able to prevent Tcellsfrom entering your central nervous system who would... "
June 7, 2015
No side effects? Have you gotten PML? Been on Tysabri almost years but also very aware it may kill me or leave me a rutabaga! (Know how to Google?) Over five hundred fifty people have gotten PML from Tysabri.

Patient concerns with Tysabri

content loaded dynamically
Filter
Filters:
Gender
Experience
Role
Age
All
We found 32,316 discussions
Nikki_1
I just had my first infusion 2 days ago. So far, so good. I had a very achy leg last night. I am unclear if that is due to the infusion or a painful lower back situation I have going in. I was really nervous about the infusion and it was very easy and uneventful. Just the way I was hoping it would be.
Nikki_1
August 9, 2015
I should have mentioned I have had ms for 10 years i am 44. Have used copaxone in past for three years.

Lalaw
URI/Sinus Infection
I was diagnosed with MS in Sept of 98 and began Copaxone therapy in April 99 after the birth of my son. I continued with this treatment for 13 years at which time my Neurologist suggested Tysabri to which
I started and was taking up until Dec 12, 2014. I got sick on Jan. 2nd 2015 with chills, fever, body aches what I took to be the flu. Since that date I have been on 4 antibiotics and have had continuing Upper Respiratory Infection, Sinus Infections. It is now May 16, 2015 and I still have not been able to return for my Tysabri Infusion due to recurring infections. I saw an allergist and am happy to say I have no allergies but somewhat disappointed. Not that I want allergies, just that I would love an explanation of what is going on with me? At least then I would know something. My dilemma the Allergist said if I could give you Steroids I would load you up and that would take care of this thing. But on Tysabri my understanding is no Steroids. So can any one tell me if they know since I've been off the Tysabri since Dec can you take steroids for infections.
June 7, 2015
I've been on Tysabri going on seven years and have used steroids for my (much milder) attacks during that period.

www.crohnsforum.com
has Tysabri for her MS and she is doing very well. You...
" ...only have Crohns but my friend has Tysabri for her MS and she is doing very well. You will... "

www.thisisms.com
year since being on Tysabri therapy, woo hoo!All my best...
" Hi Seeva, My MS is now stable, and I have not had a relapse nor any disease progression ...over a... "

www.mssociety.org.uk
e wants me to start Tysabri. What are your experiences of t...
" Tysabri? I saw my neurologist yesterday ...I keep having relapses. He wants me to start Tysabri. What are your experiences of ...want me to... "
June 7, 2015
I consider Tysabri the only decent MS med out there (at least for me?.) Even though it can kill or leave us rutabagas, for me it staved off a fast decline with my disease outset eight years ago. Been on it almost seven years. However, it's over five hundred fifty people now who've gotten PML and the company is making it harder and harder to access the hard data, now only announcing the new cases quarterly.

www.thisisms.com
there anboby treated with Tysabri and having progressive fo...
" Tysabri and progressive MS I have ...french neuros said to me Tysabri is not for you. Is there anboby treated with Tysabri... "

www.dailystrength.org
was not supposed to be getting better. Tysabri is like the...
" ...that I was not supposed to be getting better. Tysabri is like the other MS drugs - to prevent next attack from being... "

www.drugs.com
pleased with. Will this Tysabri make me gain my weight...
" Mt Dr. wants me to start Tysabri for RRMS. I have ...pleased with. Will this Tysabri make me... "

www.medhelp.org
on tysabri and get an infusion once a month. It has kept me...
" I am on tysabri and get an infusion once a month. It has kept me relapse free for 16 months. Before tysabri i... "

www.dailystrength.org
15 DOSES OF TYSABRI no side effects. They believe the drug...
" i'VE HAD 15 DOSES OF TYSABRI no side effects. They believe the drug is able to prevent Tcellsfrom entering your central nervous system who would... "
June 7, 2015
No side effects? Have you gotten PML? Been on Tysabri almost years but also very aware it may kill me or leave me a rutabaga! (Know how to Google?) Over five hundred fifty people have gotten PML from Tysabri.

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The side effects featured here are based on those most frequently appearing in user posts on the Internet. The manufacturer's product labeling should always consulted for a list of side effects most frequently appearing in patients during clinical studies. Talk to your doctor about which medications may be most appropriate for you.
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