Log in to your
account.
Quick sign up
It only takes a millisecond.
Terms and Conditions
Forgot your password?
No problem, we can help.
Enter your email address below, and you'll receive and email containing a link to reset your password.
Password reset
A confirmation email with a link to reset your password has been sent to at your request.
Please check your email and click on the link.
We do our best, but if you don't hear from us in a minute or two, please check your spam email folder.
For further assistance please contact us at support@treato.com.
Treato My Voice
Share your thoughts, experiences and ideas which could help others.
Please, no commercial content and no spam.
Make sure you enter your email address correctly so we can let you know when it goes live after a short moderation process.
The name that will be displayed with your story
Your email address will not be displayed on Treato, and will never be shared.
 
 
Thank you for sharing
Our editorial team will review this shortly and we will inform you once it goes live.
Treato My Voice
Thank you for sharing!
Your post was added to treato.com.
You’re one step away from being a registered user on Treato.
Just choose a password, and you’re done!
Treato My Voice
NOTE: All My Voice posts are carefully monitored by the Treato tream.
Your privacy is important. Treato will never sell or give your email address to a third party.
How to use bookmarks
Bookmarks allow you to easily access Treato pages that interest you through the My Treato
panel on the right
help-img
Successfully bookmarked the
page!
Bookmarks allow you to easily access Treato pages that interest you
through the My Treato panel on the right
help-img
To save and access your bookmarks from any browser, you need to be
logged in or create an account in 5 seconds.
Successfully bookmarked the
page!
You now have bookmarks. In order not to lose them, we recommend that you sign up or log in.
Security check
Let us know that you are a human.
Type the characters you see in the picture below
Submit

What patients are saying about
Topamax and Lupus

/ 269 posts
Bleeding
  • 273 posts reported Bleeding with Topamax, 0.28% of total posts
More info
Lupus
  • Lupus is #25 in Topamax discussions.
  • 269 posts reported Lupus with Topamax, 0.27% of total posts
More info
Palpitations
  • 260 posts reported Palpitations with Topamax, 0.26% of total posts
More info
Light Sensitivity
  • 233 posts reported Light Sensitivity with Topamax, 0.24% of total posts
More info
Treato Video
Follow us
share this page
Help people by sharing experiences you've had with Topamax or Lupus - your story could impact others.
Treato My Voice
By Stephanie
June 19, 2014
Stephanie wrote
Topirimate
1092views
I can not take Topirimat in 6/13 I had a brake through seizure on this med so I can only take the brand name.
Jessie  |  September 29, 2014
I take topiramate and get really bad periods, stomach pains all the time, and and really bad bone pain.
michelle  |  August 15, 2014
Comment on this post
By doodlebug
June 11, 2014
doodlebug wrote
Verapamil
Comment on this post
By 11111
June 1, 2014
11111 wrote
topamax hearing loss/rare side effects of topamax
Huh, My ears got all crazy too! I looked it up and it is a RARE side effect. So, I cut my dose as an experiment. Well, my ear is all better, but I take it for migraine prevention and now I had a migraine. So...doubling it back up...I wonder if an ENT could help?
Amanda  |  September 4, 2014
Topamax inflamed the glands, so that is what is happening in your ears. I had similar effect and even flue like symptoms. I cut down on the dosage and believing God to heal my body.
Sue  |  August 30, 2014
Comment on this post
By april
March 25, 2014
april wrote
Weigh the pros and cons
Comment on this post
By Amy
February 6, 2014
Amy wrote
Topomax
Comment on this post
By Anna
August 30, 2013
Anna wrote
Increased weight, and memory problems
Comment on this post

What patients are saying about Topamax and Lupus

269 patient discussions from healthcare websites and blogs
recently Dx'd with rhumitoid arthritis....( my mom has Lupus...
...Effexor, Lexapro, Topamax High blood pressure on the pill recently Dx'd with rhumitoid arthritis....( my mom has Lupus and Pcos,...
just a lupus thing so I am on topomax for it. I'm...
...and all, and take it from there. It could be your lupus. Mine is. It is inflammation in that area. It affects the top of my head above my eyes all the way to the back and there are muscles that...
also take topamax for seizures- you have sexual side effects...
...depakote today for my seizures, i have lupus- i also take topamax for seizures- you have sexual side effects...
my Lupus/Sjogrens/Fibro by Rheumatologist, Topomax by Psy,...
...disease and I take Synthyroid for that. I ...by an Endocrinologist, my Lupus/Sjogrens/Fibro by Rheumatologist, Topomax by Psy, Cholesteral, blood ...Opthomologist.... Once you get sick, it's...
taking Topamax and it has been helping. I have SLE and my...
...just to lay down. I've had migraines for years. The past several weeks have been taking Topamax and it has been helping. I have SLE and my MRI last year ...loss that happens with lupus and pain ...
my lupus doctor wants to find something different to try....
...am on imuran. I am having a problem with some very bad headache/migranes. I have been taking topamax but that is not working and my lupus doctor wants to find something different to try. He doesn't...
prescribed Topomax for nerve damage I suffered as a result...
I was prescribed Topomax for nerve damage I suffered ...problem is I also have Lupus, and the Topomax caused extreme fevers and Lupus flareups. I think it's very...
many yrs ago and it didnt help me but topomax does.
...am taking topomax ...yrs ago and it didnt help me but topomax does....
migraines but the side effects of the topomax are too much...
...i read about lupus, the more obsessed ...on top of my usual lupus symptoms. i'm on plaquenil, mepacrine, vitamin d and recently topomax for the migraines but the side effects of the topomax are ...
years), then Neurontin and Topamax, but I did not have any...
...35 and have had nocturnal seizures since age 5, ...9 years), then Neurontin and Topamax, but I did not have ...which led to the Keppra. I also have lupus, but that is fairly mild, and I take ...
feedback