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Tecfidera (BG-12) is taken for: MS Psoriasis RRMS

Tecfidera (BG-12)

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7,135
Discussions
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Taken for: MS, Psoriasis, RRMS
Method of use: Pill
Prescribing mode: Rx
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Tecfidera (BG-12) for MS
7,135 conversations around the web about Tecfidera (BG-12) to help you make a decision
We analyzed what people said about Tecfidera (BG-12) and compared it to other MS medications
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6 / 10
Satisfaction
?
Based on medical discussions around the web
Predicting the success of Tecfidera
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What people say about Tecfidera (BG-12)

Positive 440
Negative 383
We found 7,069 discussions
Lixd
Tecfidera absolutely causes hair loss!
I didn't want to believe it would happen, and I let it happen for months, but I seriously have half the hair I used to have?despite all the vitamins, biotin, and fish oil I take. Tecfidera did this.
May 19, 2015
I take tecfidera too and this same thing happened to me. My hair just would not grow at all over the year and a half I was on the drug. It thinned out at least by half along with no growth. No matter what I did, nothing helped.

lynn
is it o.k. to take milk thistle with Tecfidera

ec.carlson
Tecfidera and hair loss
It's VERY important that anyone seeing "hair loss" (or any side effect) from taking TECFIDERA, report this not only to their physician but most especially important, TO THE DRUG COMPANY so that it gets "official reported" as a side effect...otherwise, if it doesn't get reported, it won't be known/listed as a potential side effect (for future users).

I have lost about half my hair since going on Tecfidera. I went to my primary physician with a full reporting of my diet/lifestyle and family genetic hair history and had blood work done to rule other things out - ALL the blood work was normal and there is nothing to explain the hair loss - the only change in my life is the Tecfidera. So I not only called my physician but I called the drug company and reported it. They claimed, "No one has reported this." To which I replied, "There are people blogging about it...I cannot say if they are indeed reporting it but they ARE talking about it so then you have me, ONE person, reporting it."

I urge you to consider calling the drug company and reporting your experience - this will help ALL current and future use of Tecfidera.

TECFIDERA PATIENT SERVICES: x-xxx-xx-xxx

scorpio
started Tecfidera last June, still not happy about side effects, such as really bad flushing and worst of all a sluggish digestive system which causes constipation and bloating, its like constant I.B.S all the time, plus some weight gain:(

Laura
I have been on Tecfidera almost a year now and have gain a lot of weight is that normal or has anyone else have the same problem?
April 20, 2015
I have not fained weight with Tecfidera. I have Progressive Relapsing MS and I was actually able to become more active, exercising and weights, and even started playing golf again. Had to start out slow and easy with exercise but I went from barely being able to walk, even with a cane and falling due to issues like spaciticity, dizziness, vertigo...etc. it got to the point where I was able to practice at driving range for 2-4 hours or for an hour and then play 18-36 holes of golf in a day. I g

KookyKathy
Meds
Is Tecfidera the dames as retuxion?

glenda
tecfidera
Been on tecfidera for 1 year. Have experienced the flushing but rarely happens now. I have lost some weight but am working to get it back. My biggest concern is my low white blood count. Haven't had my mri yet but am anxious for the results.

MJ
weight gain
I have been on tecfidera for 3 weeks and have gained 7 pounds. Is this normal?

Julie
Tecfidera and anaphylaxis, angioedema and rashes
I had all three new symptoms on the patient information sheet. Because I experienced these problems before the new prescribing warnings were added, I stayed on the drug. I don't know if Tecfidera was the cause, but it was Singulair that finally reduced the skin issues, and especially the angioedema (not fun!).

Kim
Low White Blood Count on Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?
May 19, 2015
I have been on Tecfidera for 18 months and my recent blood tests have shown abnormally low white blood cell counts while on this medication. My neurologist has taken me off of the drug stating it is not worth the risk. Going to repeat my blood work in 3 weeks to see if the wbc has rebounded and then pick another medication. Aside from the flushing and the hair loss I was pleased with the drug. No new lesions after a year of being on treatment. Not sure the drug has had enough clinical tria
Maria
January 26, 2015
I have been on Tecfidera for 8 months now. My white blood cells went to .6. My neurologist suggested I stop taking the pills for 3 weeks, which I did, and my white cells went up again. Now I have been on Tecfidera for two weeks. After the next blood test I will know, what's the situation with my white blood. If the lymphocytes are down again, I will stop the pills.
I have also been very depressed and unpatient...
January 15, 2015
My wife has been told to stop taking Tecfidera due to low white count (around .6, I believe). Aubagio is next, once her white count stabilizes.
susan
January 2, 2015
Would love to hear from someone who was on Rebif and who then went on tecfidera.
Susan
January 2, 2015
I have been on tecfidera for 7 months, and just remembering to take these pills each day is a problem. I never not take them, but if I had to be sure to take them at a certain time during the day I would be in big trouble. I take it in the morning sometime between 9 and 11 and then I take it at night, some time between 6 and 8. This concerns me because I know you should be taking it at the same time each day. I don't know how this affects the benefits of this drug. I was taking Rebif and I
Jim
January 1, 2015
Me too. I had been on it 17 months. Went .8, .7, .64, .59 at which point I quit it. I will go back on copaxone after lymphocytes (hopefully) rebound.

Was doing well on Tecfidera but not worth the risk.
Andy
December 16, 2014
Yes, I have...I have been on it for 4 mos andand my white blood cell count went way down also.
I am going to see my neurologist tomorrow as he will research this and let me know what we are doing. I LOVE the drug..NO MORE shots...and hope he does NOT take me off the meds

Patient concerns with Tecfidera (BG-12)

We found 7,069 discussions
Lixd
Tecfidera absolutely causes hair loss!
I didn't want to believe it would happen, and I let it happen for months, but I seriously have half the hair I used to have?despite all the vitamins, biotin, and fish oil I take. Tecfidera did this.
May 19, 2015
I take tecfidera too and this same thing happened to me. My hair just would not grow at all over the year and a half I was on the drug. It thinned out at least by half along with no growth. No matter what I did, nothing helped.

lynn
is it o.k. to take milk thistle with Tecfidera

ec.carlson
Tecfidera and hair loss
It's VERY important that anyone seeing "hair loss" (or any side effect) from taking TECFIDERA, report this not only to their physician but most especially important, TO THE DRUG COMPANY so that it gets "official reported" as a side effect...otherwise, if it doesn't get reported, it won't be known/listed as a potential side effect (for future users).

I have lost about half my hair since going on Tecfidera. I went to my primary physician with a full reporting of my diet/lifestyle and family genetic hair history and had blood work done to rule other things out - ALL the blood work was normal and there is nothing to explain the hair loss - the only change in my life is the Tecfidera. So I not only called my physician but I called the drug company and reported it. They claimed, "No one has reported this." To which I replied, "There are people blogging about it...I cannot say if they are indeed reporting it but they ARE talking about it so then you have me, ONE person, reporting it."

I urge you to consider calling the drug company and reporting your experience - this will help ALL current and future use of Tecfidera.

TECFIDERA PATIENT SERVICES: x-xxx-xx-xxx

scorpio
started Tecfidera last June, still not happy about side effects, such as really bad flushing and worst of all a sluggish digestive system which causes constipation and bloating, its like constant I.B.S all the time, plus some weight gain:(

Laura
I have been on Tecfidera almost a year now and have gain a lot of weight is that normal or has anyone else have the same problem?
April 20, 2015
I have not fained weight with Tecfidera. I have Progressive Relapsing MS and I was actually able to become more active, exercising and weights, and even started playing golf again. Had to start out slow and easy with exercise but I went from barely being able to walk, even with a cane and falling due to issues like spaciticity, dizziness, vertigo...etc. it got to the point where I was able to practice at driving range for 2-4 hours or for an hour and then play 18-36 holes of golf in a day. I g

KookyKathy
Meds
Is Tecfidera the dames as retuxion?

glenda
tecfidera
Been on tecfidera for 1 year. Have experienced the flushing but rarely happens now. I have lost some weight but am working to get it back. My biggest concern is my low white blood count. Haven't had my mri yet but am anxious for the results.

MJ
weight gain
I have been on tecfidera for 3 weeks and have gained 7 pounds. Is this normal?

Julie
Tecfidera and anaphylaxis, angioedema and rashes
I had all three new symptoms on the patient information sheet. Because I experienced these problems before the new prescribing warnings were added, I stayed on the drug. I don't know if Tecfidera was the cause, but it was Singulair that finally reduced the skin issues, and especially the angioedema (not fun!).

Kim
Low White Blood Count on Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?
May 19, 2015
I have been on Tecfidera for 18 months and my recent blood tests have shown abnormally low white blood cell counts while on this medication. My neurologist has taken me off of the drug stating it is not worth the risk. Going to repeat my blood work in 3 weeks to see if the wbc has rebounded and then pick another medication. Aside from the flushing and the hair loss I was pleased with the drug. No new lesions after a year of being on treatment. Not sure the drug has had enough clinical tria
Maria
January 26, 2015
I have been on Tecfidera for 8 months now. My white blood cells went to .6. My neurologist suggested I stop taking the pills for 3 weeks, which I did, and my white cells went up again. Now I have been on Tecfidera for two weeks. After the next blood test I will know, what's the situation with my white blood. If the lymphocytes are down again, I will stop the pills.
I have also been very depressed and unpatient...
January 15, 2015
My wife has been told to stop taking Tecfidera due to low white count (around .6, I believe). Aubagio is next, once her white count stabilizes.
susan
January 2, 2015
Would love to hear from someone who was on Rebif and who then went on tecfidera.
Susan
January 2, 2015
I have been on tecfidera for 7 months, and just remembering to take these pills each day is a problem. I never not take them, but if I had to be sure to take them at a certain time during the day I would be in big trouble. I take it in the morning sometime between 9 and 11 and then I take it at night, some time between 6 and 8. This concerns me because I know you should be taking it at the same time each day. I don't know how this affects the benefits of this drug. I was taking Rebif and I
Jim
January 1, 2015
Me too. I had been on it 17 months. Went .8, .7, .64, .59 at which point I quit it. I will go back on copaxone after lymphocytes (hopefully) rebound.

Was doing well on Tecfidera but not worth the risk.
Andy
December 16, 2014
Yes, I have...I have been on it for 4 mos andand my white blood cell count went way down also.
I am going to see my neurologist tomorrow as he will research this and let me know what we are doing. I LOVE the drug..NO MORE shots...and hope he does NOT take me off the meds

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