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Tecfidera (BG-12) is taken for: MS Psoriasis RRMS

Tecfidera (BG-12)

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7,030
Discussions
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Taken for: MS, Psoriasis, RRMS
Method of use: Pill
Prescribing mode: Rx
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Based on medical discussions around the web
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Tecfidera (BG-12) for MS
7,030 conversations around the web about Tecfidera (BG-12) to help you make a decision
We analyzed what people said about Tecfidera (BG-12) and compared it to other MS medications
Ask a question
6 / 10
Satisfaction
?
Based on medical discussions around the web
Predicting the success of Tecfidera
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What people say about Tecfidera (BG-12)

Positive 432
Negative 372
We found 6,964 discussions
Laura
I have been on Tecfidera almost a year now and have gain a lot of weight is that normal or has anyone else have the same problem?
April 20, 2015
I have not fained weight with Tecfidera. I have Progressive Relapsing MS and I was actually able to become more active, exercising and weights, and even started playing golf again. Had to start out slow and easy with exercise but I went from barely being able to walk, even with a cane and falling due to issues like spaciticity, dizziness, vertigo...etc. it got to the point where I was able to practice at driving range for 2-4 hours or for an hour and then play 18-36 holes of golf in a day. I g

KookyKathy
Meds
Is Tecfidera the dames as retuxion?

glenda
tecfidera
Been on tecfidera for 1 year. Have experienced the flushing but rarely happens now. I have lost some weight but am working to get it back. My biggest concern is my low white blood count. Haven't had my mri yet but am anxious for the results.

MJ
weight gain
I have been on tecfidera for 3 weeks and have gained 7 pounds. Is this normal?
April 20, 2015
See my response to Laura above!

Julie
Tecfidera and anaphylaxis, angioedema and rashes
I had all three new symptoms on the patient information sheet. Because I experienced these problems before the new prescribing warnings were added, I stayed on the drug. I don't know if Tecfidera was the cause, but it was Singulair that finally reduced the skin issues, and especially the angioedema (not fun!).

Kim
Low White Blood Count on Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?
Maria
January 26, 2015
I have been on Tecfidera for 8 months now. My white blood cells went to .6. My neurologist suggested I stop taking the pills for 3 weeks, which I did, and my white cells went up again. Now I have been on Tecfidera for two weeks. After the next blood test I will know, what's the situation with my white blood. If the lymphocytes are down again, I will stop the pills.
I have also been very depressed and unpatient...
January 15, 2015
My wife has been told to stop taking Tecfidera due to low white count (around .6, I believe). Aubagio is next, once her white count stabilizes.
susan
January 2, 2015
Would love to hear from someone who was on Rebif and who then went on tecfidera.
Susan
January 2, 2015
I have been on tecfidera for 7 months, and just remembering to take these pills each day is a problem. I never not take them, but if I had to be sure to take them at a certain time during the day I would be in big trouble. I take it in the morning sometime between 9 and 11 and then I take it at night, some time between 6 and 8. This concerns me because I know you should be taking it at the same time each day. I don't know how this affects the benefits of this drug. I was taking Rebif and I
Jim
January 1, 2015
Me too. I had been on it 17 months. Went .8, .7, .64, .59 at which point I quit it. I will go back on copaxone after lymphocytes (hopefully) rebound.

Was doing well on Tecfidera but not worth the risk.
Andy
December 16, 2014
Yes, I have...I have been on it for 4 mos andand my white blood cell count went way down also.
I am going to see my neurologist tomorrow as he will research this and let me know what we are doing. I LOVE the drug..NO MORE shots...and hope he does NOT take me off the meds

Kim
Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?

Sharon
side effects
Been on Tecfidera for 7 months, thought things were going well, had a relapse 3 months in, extreme vertigo, have always been tired. Relapse went away but I never really felt well. Pressure in chest, redness, flushing, rash, gaseous. Forgot pill one day when I was feeling well, remember around noon and took it with lunch. Within the hour the fatigue, chest pressure, mild dizzy all came back. Have stopped taking it now for 3 days, and the difference on how I feel is like night and day. I have energy, I am able to stay up past 7 o'clock at night, chest pain and tightness is gone. Every day I feel better. Not sure what to do next, I am not going back on it, that much I do know, but I am sure my drs will want me to try something else. May decide to go back on the injections (betaseron) was on that for 8 years, although I really do not like the bruising that comes with the injections.
April 20, 2015
Read my comment above to Laura!
danny
January 2, 2015
I switched from beta seron to tecfidera in april, like you and thought it was going well then around october started having moments of extreme vertigo and slurring and it has gotten worse. I would like to go back to beta seron but my doc dont seem to want to. I was doing a lot better on it in my opinion. My doc wants to go to tysabri which is plastered all over the waiting room now. I noticed there use to be Beta Seron literature there, now it is gone and tecfidera and tysabri literature is th

Ratsy70
Just started Techfidera
Started Techfidera August 5, 2014

Aug 5- Had no side effects.
Aug 6- Mild Headache but went away
Aug 7- Had some body aches later in day
Aug 8- Woke up with body aches that hurt throughout the day.
Aug 9- Woke up with no side effects :D :D :D

Overall I'm having a great experience on Techfidera. I never had the lobster red flushing or rashes. I'm very excited to have switched to Techfidera from Copaxone.

Nata
1st day on Tecfidera
Took my first dose@9 a.m & turned beat red, flushing & itching for almost 2 hours. Not terrible but am really sleepy very concerned w/that symptom. Anyone else sleepy?
April 20, 2015
Read my comment above to Laura!
Lisa
January 28, 2015
I took my first dose this morning . Flushing for an hour nausea and my head feels so foggy is this normal ?
Joe
December 20, 2014
I'm on week two and I have the same lethargy and fatigue described above, so you aren't alone there. Does anyone know if side effects get better or worse with time?
Richie
August 24, 2014
I started taking it in May of '14 & no rash or stomach pain. I am sleepy all the time. I could fall asleep tight now. Not sure it's a side effect but was not like this a year ago. Best of luck! I'm here for you XXXX@aol.XXXcom Richie
August 20, 2014
Hang in there...it gets better...
Crystal
August 10, 2014
Took 2nd dose tonight - Yes, I feel sleepy too. With my first dose this morning - I also turned beet red all over (rash), had some flushing and mild itch. With 2nd dose - My throat feels weird but no flushing and I don't have the rash.

Patient concerns with Tecfidera (BG-12)

We found 6,964 discussions
Laura
I have been on Tecfidera almost a year now and have gain a lot of weight is that normal or has anyone else have the same problem?
April 20, 2015
I have not fained weight with Tecfidera. I have Progressive Relapsing MS and I was actually able to become more active, exercising and weights, and even started playing golf again. Had to start out slow and easy with exercise but I went from barely being able to walk, even with a cane and falling due to issues like spaciticity, dizziness, vertigo...etc. it got to the point where I was able to practice at driving range for 2-4 hours or for an hour and then play 18-36 holes of golf in a day. I g

KookyKathy
Meds
Is Tecfidera the dames as retuxion?

glenda
tecfidera
Been on tecfidera for 1 year. Have experienced the flushing but rarely happens now. I have lost some weight but am working to get it back. My biggest concern is my low white blood count. Haven't had my mri yet but am anxious for the results.

MJ
weight gain
I have been on tecfidera for 3 weeks and have gained 7 pounds. Is this normal?
April 20, 2015
See my response to Laura above!

Julie
Tecfidera and anaphylaxis, angioedema and rashes
I had all three new symptoms on the patient information sheet. Because I experienced these problems before the new prescribing warnings were added, I stayed on the drug. I don't know if Tecfidera was the cause, but it was Singulair that finally reduced the skin issues, and especially the angioedema (not fun!).

Kim
Low White Blood Count on Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?
Maria
January 26, 2015
I have been on Tecfidera for 8 months now. My white blood cells went to .6. My neurologist suggested I stop taking the pills for 3 weeks, which I did, and my white cells went up again. Now I have been on Tecfidera for two weeks. After the next blood test I will know, what's the situation with my white blood. If the lymphocytes are down again, I will stop the pills.
I have also been very depressed and unpatient...
January 15, 2015
My wife has been told to stop taking Tecfidera due to low white count (around .6, I believe). Aubagio is next, once her white count stabilizes.
susan
January 2, 2015
Would love to hear from someone who was on Rebif and who then went on tecfidera.
Susan
January 2, 2015
I have been on tecfidera for 7 months, and just remembering to take these pills each day is a problem. I never not take them, but if I had to be sure to take them at a certain time during the day I would be in big trouble. I take it in the morning sometime between 9 and 11 and then I take it at night, some time between 6 and 8. This concerns me because I know you should be taking it at the same time each day. I don't know how this affects the benefits of this drug. I was taking Rebif and I
Jim
January 1, 2015
Me too. I had been on it 17 months. Went .8, .7, .64, .59 at which point I quit it. I will go back on copaxone after lymphocytes (hopefully) rebound.

Was doing well on Tecfidera but not worth the risk.
Andy
December 16, 2014
Yes, I have...I have been on it for 4 mos andand my white blood cell count went way down also.
I am going to see my neurologist tomorrow as he will research this and let me know what we are doing. I LOVE the drug..NO MORE shots...and hope he does NOT take me off the meds

Kim
Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?

Sharon
side effects
Been on Tecfidera for 7 months, thought things were going well, had a relapse 3 months in, extreme vertigo, have always been tired. Relapse went away but I never really felt well. Pressure in chest, redness, flushing, rash, gaseous. Forgot pill one day when I was feeling well, remember around noon and took it with lunch. Within the hour the fatigue, chest pressure, mild dizzy all came back. Have stopped taking it now for 3 days, and the difference on how I feel is like night and day. I have energy, I am able to stay up past 7 o'clock at night, chest pain and tightness is gone. Every day I feel better. Not sure what to do next, I am not going back on it, that much I do know, but I am sure my drs will want me to try something else. May decide to go back on the injections (betaseron) was on that for 8 years, although I really do not like the bruising that comes with the injections.
April 20, 2015
Read my comment above to Laura!
danny
January 2, 2015
I switched from beta seron to tecfidera in april, like you and thought it was going well then around october started having moments of extreme vertigo and slurring and it has gotten worse. I would like to go back to beta seron but my doc dont seem to want to. I was doing a lot better on it in my opinion. My doc wants to go to tysabri which is plastered all over the waiting room now. I noticed there use to be Beta Seron literature there, now it is gone and tecfidera and tysabri literature is th

Ratsy70
Just started Techfidera
Started Techfidera August 5, 2014

Aug 5- Had no side effects.
Aug 6- Mild Headache but went away
Aug 7- Had some body aches later in day
Aug 8- Woke up with body aches that hurt throughout the day.
Aug 9- Woke up with no side effects :D :D :D

Overall I'm having a great experience on Techfidera. I never had the lobster red flushing or rashes. I'm very excited to have switched to Techfidera from Copaxone.

Nata
1st day on Tecfidera
Took my first dose@9 a.m & turned beat red, flushing & itching for almost 2 hours. Not terrible but am really sleepy very concerned w/that symptom. Anyone else sleepy?
April 20, 2015
Read my comment above to Laura!
Lisa
January 28, 2015
I took my first dose this morning . Flushing for an hour nausea and my head feels so foggy is this normal ?
Joe
December 20, 2014
I'm on week two and I have the same lethargy and fatigue described above, so you aren't alone there. Does anyone know if side effects get better or worse with time?
Richie
August 24, 2014
I started taking it in May of '14 & no rash or stomach pain. I am sleepy all the time. I could fall asleep tight now. Not sure it's a side effect but was not like this a year ago. Best of luck! I'm here for you XXXX@aol.XXXcom Richie
August 20, 2014
Hang in there...it gets better...
Crystal
August 10, 2014
Took 2nd dose tonight - Yes, I feel sleepy too. With my first dose this morning - I also turned beet red all over (rash), had some flushing and mild itch. With 2nd dose - My throat feels weird but no flushing and I don't have the rash.

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