Tecfidera (BG-12)

7,513
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Taken for: MS, Psoriasis, RRMS
Method of use: Pill
Prescribing mode: Rx
3.0
5 7513
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Tecfidera (BG-12) for MS
7,513 conversations around the web about Tecfidera (BG-12) to help you make a decision
We analyzed what people said about Tecfidera (BG-12) and compared it to other MS medications
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3.0
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What people say about Tecfidera (BG-12)

Positive 478
Negative 409
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Jsahmom
I have been on Tecfidera a little over 2 years and have considerable hair loss where I can see bald patches and breakage. Has anyone gone off it and had their hair grow back? I hope so, because I'd like to go off it.

MS. Claire
Tecfidera is aggravating my Restless Legs Syndrome (Willis Ekbom Disease). My RLS had been stable, until I started Tecfidera. Anyone else experience this?

Debbie Ramsey
I've beehn on Tecfidera since May 2004. In October 2004 started getting UTI's once or twice a month

Rosemae
Tecfidera
Rosemae
June 22, 2015
Hello, I am new to message boards. They are scaring me to pieces. I have been on Copaxone
for almost 15 years. Too many shots, time to stop. I just finished the starter pack of Tecfidera.
I have had very minor issues. Slight flushing and stomach upset, hardly worth mentioning. I
want to post something positive. All I read is negative. So far thumbs up on Tec. Thank you

Lixd
Tecfidera absolutely causes hair loss!
I didn't want to believe it would happen, and I let it happen for months, but I seriously have half the hair I used to have…despite all the vitamins, biotin, and fish oil I take. Tecfidera did this.
Deb Solomon
June 2, 2015
I have been taking Tecfidera since FDA approved it. I want it to work and at one year MRI had little change for the worse. No MRI this year yet. I have noted continual disturbing burning flushes and bad GI issues. My hair has thinned significantly by about half. I have had weight gain a nd headaches. Most disturbing to me is altered mobility to include marked decline in balance and weakness. Pain is worse in legs. I suppose a body has to try whatever it takes but at some point the quality of life must be evaluated.
May 19, 2015
I take tecfidera too and this same thing happened to me. My hair just would not grow at all over the year and a half I was on the drug. It thinned out at least by half along with no growth. No matter what I did, nothing helped.

lynn
is it o.k. to take milk thistle with Tecfidera

ec.carlson
Tecfidera and hair loss
It's VERY important that anyone seeing "hair loss" (or any side effect) from taking TECFIDERA, report this not only to their physician but most especially important, TO THE DRUG COMPANY so that it gets "official reported" as a side effect...otherwise, if it doesn't get reported, it won't be known/listed as a potential side effect (for future users).

I have lost about half my hair since going on Tecfidera. I went to my primary physician with a full reporting of my diet/lifestyle and family genetic hair history and had blood work done to rule other things out - ALL the blood work was normal and there is nothing to explain the hair loss - the only change in my life is the Tecfidera. So I not only called my physician but I called the drug company and reported it. They claimed, "No one has reported this." To which I replied, "There are people blogging about it...I cannot say if they are indeed reporting it but they ARE talking about it so then you have me, ONE person, reporting it."

I urge you to consider calling the drug company and reporting your experience - this will help ALL current and future use of Tecfidera.

TECFIDERA PATIENT SERVICES: x-xxx-xx-xxx

scorpio
started Tecfidera last June, still not happy about side effects, such as really bad flushing and worst of all a sluggish digestive system which causes constipation and bloating, its like constant I.B.S all the time, plus some weight gain:(

Laura
I have been on Tecfidera almost a year now and have gain a lot of weight is that normal or has anyone else have the same problem?
April 20, 2015
I have not fained weight with Tecfidera. I have Progressive Relapsing MS and I was actually able to become more active, exercising and weights, and even started playing golf again. Had to start out slow and easy with exercise but I went from barely being able to walk, even with a cane and falling due to issues like spaciticity, dizziness, vertigo...etc. it got to the point where I was able to practice at driving range for 2-4 hours or for an hour and then play 18-36 holes of golf in a day. I g

KookyKathy
Meds
Is Tecfidera the dames as retuxion?

Patient concerns with Tecfidera (BG-12)

content loaded dynamically
Filter
Filters:
Gender
Sentiment
Role
Age
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We found 7,447 discussions
Jsahmom
I have been on Tecfidera a little over 2 years and have considerable hair loss where I can see bald patches and breakage. Has anyone gone off it and had their hair grow back? I hope so, because I'd like to go off it.

MS. Claire
Tecfidera is aggravating my Restless Legs Syndrome (Willis Ekbom Disease). My RLS had been stable, until I started Tecfidera. Anyone else experience this?

Debbie Ramsey
I've beehn on Tecfidera since May 2004. In October 2004 started getting UTI's once or twice a month

Rosemae
Tecfidera
Rosemae
June 22, 2015
Hello, I am new to message boards. They are scaring me to pieces. I have been on Copaxone
for almost 15 years. Too many shots, time to stop. I just finished the starter pack of Tecfidera.
I have had very minor issues. Slight flushing and stomach upset, hardly worth mentioning. I
want to post something positive. All I read is negative. So far thumbs up on Tec. Thank you

Lixd
Tecfidera absolutely causes hair loss!
I didn't want to believe it would happen, and I let it happen for months, but I seriously have half the hair I used to have…despite all the vitamins, biotin, and fish oil I take. Tecfidera did this.
Deb Solomon
June 2, 2015
I have been taking Tecfidera since FDA approved it. I want it to work and at one year MRI had little change for the worse. No MRI this year yet. I have noted continual disturbing burning flushes and bad GI issues. My hair has thinned significantly by about half. I have had weight gain a nd headaches. Most disturbing to me is altered mobility to include marked decline in balance and weakness. Pain is worse in legs. I suppose a body has to try whatever it takes but at some point the quality of life must be evaluated.
May 19, 2015
I take tecfidera too and this same thing happened to me. My hair just would not grow at all over the year and a half I was on the drug. It thinned out at least by half along with no growth. No matter what I did, nothing helped.

lynn
is it o.k. to take milk thistle with Tecfidera

ec.carlson
Tecfidera and hair loss
It's VERY important that anyone seeing "hair loss" (or any side effect) from taking TECFIDERA, report this not only to their physician but most especially important, TO THE DRUG COMPANY so that it gets "official reported" as a side effect...otherwise, if it doesn't get reported, it won't be known/listed as a potential side effect (for future users).

I have lost about half my hair since going on Tecfidera. I went to my primary physician with a full reporting of my diet/lifestyle and family genetic hair history and had blood work done to rule other things out - ALL the blood work was normal and there is nothing to explain the hair loss - the only change in my life is the Tecfidera. So I not only called my physician but I called the drug company and reported it. They claimed, "No one has reported this." To which I replied, "There are people blogging about it...I cannot say if they are indeed reporting it but they ARE talking about it so then you have me, ONE person, reporting it."

I urge you to consider calling the drug company and reporting your experience - this will help ALL current and future use of Tecfidera.

TECFIDERA PATIENT SERVICES: x-xxx-xx-xxx

scorpio
started Tecfidera last June, still not happy about side effects, such as really bad flushing and worst of all a sluggish digestive system which causes constipation and bloating, its like constant I.B.S all the time, plus some weight gain:(

Laura
I have been on Tecfidera almost a year now and have gain a lot of weight is that normal or has anyone else have the same problem?
April 20, 2015
I have not fained weight with Tecfidera. I have Progressive Relapsing MS and I was actually able to become more active, exercising and weights, and even started playing golf again. Had to start out slow and easy with exercise but I went from barely being able to walk, even with a cane and falling due to issues like spaciticity, dizziness, vertigo...etc. it got to the point where I was able to practice at driving range for 2-4 hours or for an hour and then play 18-36 holes of golf in a day. I g

KookyKathy
Meds
Is Tecfidera the dames as retuxion?

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The side effects featured here are based on those most frequently appearing in user posts on the Internet. The manufacturer's product labeling should always consulted for a list of side effects most frequently appearing in patients during clinical studies. Talk to your doctor about which medications may be most appropriate for you.
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