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Predicting the success of Tecfidera

Tecfidera (BG-12)

/ 4,562 posts

Positive Experiences with MS Medications Change usage

Based on 4,562 patient discussions on healthcare websites and blogs. Learn more
Get more info! Tecfidera (BG-12)4,562 posts
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Tecfidera (BG-12) Top Concerns

Based on 4,562 patient discussions on healthcare websites and blogs
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Help people by sharing experiences you've had with Tecfidera (BG-12) - your story could impact others.
Treato My Voice
By Myachinghead
January 16, 2014
Myachinghead wrote
I have a history od severe migraines (not uncommon in individuals wiyh brain lesions) and needed to discontinue Avonex (after 7 good years) due to recalcitrant migraines. I started Techfidera 3 weeks ago and have had a migraine every day for the past 8 days. The headaches respond to my rescue medicines, but nothing prevents them or relieves them other than the rescue meds.
Comment on this post
By Martha Jones
December 30, 2013
Martha Jones wrote
lst day of 120 mg of Tecfidera. Itching and seems like fire inside my body. Took one benadryl after taking the second pill and it seems to be helping.
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By Vanessa
December 17, 2013
Vanessa wrote
Weight Loss
I started taking Tecfidera in July. In the beginning I experienced the flushing and some constipation. Overall I have done really well on the drug. I wanted to know has anyone else expereinced weight loss on Tecfidera. I thought I was under stress, but this morning when I tried on some pants I realized it had to be something else. Finally, I decided to check the website. I'm 5'4 and I really can't afford to loose weight. Does anyone have any suggestions?
I have been on Tec 2 weeks and am experimenting weight gain w/ hunger.
Lilly  |  April 4, 2014
I started on the tec November 2013, and started dropping a little weight consistently until I stopped it just 2 weeks ago. I would have stayed on it but for the other side effects- debilitating nausea, headaches, tooth and gum lesions and pain and hair loss. When I was asked by someone if I had cancer (because of the weight loss) that was enough for me. I should have known better than to consume cleaning products even if they have "reformulated" it and put it in a capsule. I'm getting tir
Cyndie  |  March 29, 2014
Why Tec? I see no weightloss info on it...
Ramprat  |  February 26, 2014
I've been on Tecfidera about four months now and have lost 20 pounds. While I walk miles and miles every day and eat really well, I haven't really changed diet or exercise.
Kristin  |  January 28, 2014
I've been on Tec for over 3 months now. I've lost about 15lbs w/o dieting or much exercise. Going to see the dr soon
SoccerDad  |  January 26, 2014
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By Linda
December 12, 2013
Linda wrote
Debating with Dr whether or not to start the drug. Have been on all of them over the past 10 years and just can't do the injections any longer. So tired of all the side effects and the trouble of doing them. Dr told me to research this one and see what I think. I have read everything I can find on it now I want to know what the people that are actually taking it really think. Just wondered if people are staying with it when they start and how it is going for them?
Comment on this post
By Marcia
September 5, 2013
Marcia wrote
Day 8 terrified still of side effects but ALL minor to date! Feeling upbeat at times then exhausted at others. Moving around more, smaller appetite, some warmth feelings and chills but as mentioned minor. Take with food and water, I take a probiotic and other supplements, stationary bike 1 - 2 mile 4xweek. Homeschool autistic son, great for my mind. Mobility went way down this past year(walker/wheel chair) and time for treatment.
I had been on Rebif 7 years but could not tolerate it any more. That was 3 years ago. Start date date of tecfidera August 29, 2013. Full speed ahead with this med. Well wishes to you all.
Pam I also am experiencing extreme fatigue. I am not sure if it's just my MS or if the drug is making it worse. I feel like my arms and legs have weights attached to them.
Ann  |  March 11, 2014
I recently switched from Copaxone, after 10 years. I had no injection sites left. I have been on Tecfidera about 7 months. My recent MRI scans is stable. I still flush, intermittently, several hours after meals. Benadryl handles it well. The major side effect that I have is extreme fatigue. This is different than my normal MS fatigue. I am trying to stick with it to see if after time, it subsides. Hope this helps!
Pam  |  January 6, 2014
Hi Marcia, I do not take Tecfidera but am considering it. I have taken copaxone for over ten yrs. now and have had some flares with optic neuritis, heavy legs with difficulty walking and some fat destruction in my legs where shots are done but Copaxone seems to be working and I feel very stable. I do try to stay out of the sun and to keep my stress as low as possible (read Bible for this every p.m.). I am looking into Tecfidera as I would like to stop taking shots daily. jane
jane  |  September 16, 2013
Comment on this post
By Cheryl Baker
August 22, 2013
Cheryl Baker wrote
I've been on Tecfidera for about 3 months...
I never had any flushing while on the starter kit (low dose). As soon as I went to the higher dose, I had a lot of flushing and itching. Every once in a while this still happens but Benadryl clears it right up. Also, with the higher dose, I have begun spotting and/or lightly cramping. Has anyone else had a similar experience?
I have been on it for 6 months and have not had those issues.
Pam  |  January 6, 2014
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What patients are saying about Tecfidera (BG-12)

4,562 patient discussions from healthcare websites and blogs
Going for Rituxan from Tecfidera. Any tips or advice...
...MS since 1999. Finally got diagnosed with SPMS. I have been without a spleen since 1974 due to trauma. Going for Rituxan from Tecfidera. Any tips or advice from those who have tried Rituxan?...
so specialist is switching me to bg12. I just got tysabri...
...Built antibodies so specialist is switching me to bg12. I just got tysabri Friday so at the end of April I'm to do a round of prednisone. He said a lot of people coming off tysabri ...start bg 1...
w ms since December been on Tecfidera since January...
...w ms since December been on Tecfidera since ...and rash i wanna change to the shot avonex only take once a week does any 1 know how that is and does any1 have tge same reaction on Tecfidera i al...
Tecfidera. Well 2 weeks ago I developed dishydrotic eczema...
...half months ago I started Tecfidera. Well 2 weeks ago I developed dishydrotic eczema on both palms of hands and both soles of feet. Neuro stopped Tecfidera. I want to go back to Tysabri - 6 year...
Tecfidera today (Read 37 times) Had appt with new ms...
Starting Tecfidera today (Read 37 times) Had appt with new ms doctor on Apr 17th (my old neuro moved ...mri in Dec. She switched me to Tecfidera from Avonex. Approval went fast. I...
problems? I've been on Tecfidera for a couple of...
...Switching from Tysabri to Tecfidera. I was wondering if ...rebound effect even though on Tecfidera now. I started the Tecfidera ...having adjustment problems? I've been on Tecfidera for a c...
recently switched to BG-12 from copaxone. I have about a...
...was recently switched to BG-12 from copaxone. I have about a months worth of copax left. Does anybody know of a place I could donate it instead of just having it destroyed? **MS World Guideline ...
3 months ago and went to Tecfidera. 3 months in, I'm now...
My MS was very aggressive before taking Tysabri...was having relapses every 3 months. I went on Tysabri and ...so I came off Tysabri 3 months ago and went to Tecfidera. 3 months in, I'm now...
and she was very hopeful that BG12 would be in the mix next...
...was very hopeful that BG12 would be in the ...with it? I'm really hoping BG12 does get the go ahead ...wouldn't have to try Avonex/rebif first. You can go straight from copaxone onto them b...
if I don't like it, I can always go back to the Betaseron...
...it upsets my stomach a bit. I may wait on the Tecfidera until I am completely done with the Chantix. I just rec'd another month of shots anyway. But as soon as I can....I'm going to the...