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Tecfidera (BG-12) is taken for: MS Psoriasis RRMS

Tecfidera (BG-12)

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6,134
Discussions
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Taken for: MS, Psoriasis, RRMS
Method of use: Pill
Prescribing mode: Rx
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Tecfidera (BG-12) for MS
6,134 conversations around the web about Tecfidera (BG-12) to help you make a decision
We analyzed what people said about Tecfidera (BG-12) and compared it to other MS medications
Ask a question
6 / 10
Satisfaction
?
Based on medical discussions around the web
Predicting the success of Tecfidera
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What people say about Tecfidera (BG-12)

Positive 353
Negative 320
We found 6,136 discussions
KookyKathy
Meds
Is Tecfidera the dames as retuxion?

glenda
tecfidera
Been on tecfidera for 1 year. Have experienced the flushing but rarely happens now. I have lost some weight but am working to get it back. My biggest concern is my low white blood count. Haven't had my mri yet but am anxious for the results.

MJ
weight gain
I have been on tecfidera for 3 weeks and have gained 7 pounds. Is this normal?

Julie
Tecfidera and anaphylaxis, angioedema and rashes
I had all three new symptoms on the patient information sheet. Because I experienced these problems before the new prescribing warnings were added, I stayed on the drug. I don't know if Tecfidera was the cause, but it was Singulair that finally reduced the skin issues, and especially the angioedema (not fun!).

Kim
Low White Blood Count on Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?
Maria
January 26, 2015
I have been on Tecfidera for 8 months now. My white blood cells went to .6. My neurologist suggested I stop taking the pills for 3 weeks, which I did, and my white cells went up again. Now I have been on Tecfidera for two weeks. After the next blood test I will know, what's the situation with my white blood. If the lymphocytes are down again, I will stop the pills.
I have also been very depressed and unpatient...
January 15, 2015
My wife has been told to stop taking Tecfidera due to low white count (around .6, I believe). Aubagio is next, once her white count stabilizes.
susan
January 2, 2015
Would love to hear from someone who was on Rebif and who then went on tecfidera.
Susan
January 2, 2015
I have been on tecfidera for 7 months, and just remembering to take these pills each day is a problem. I never not take them, but if I had to be sure to take them at a certain time during the day I would be in big trouble. I take it in the morning sometime between 9 and 11 and then I take it at night, some time between 6 and 8. This concerns me because I know you should be taking it at the same time each day. I don't know how this affects the benefits of this drug. I was taking Rebif and I
Jim
January 1, 2015
Me too. I had been on it 17 months. Went .8, .7, .64, .59 at which point I quit it. I will go back on copaxone after lymphocytes (hopefully) rebound.

Was doing well on Tecfidera but not worth the risk.
Andy
December 16, 2014
Yes, I have...I have been on it for 4 mos andand my white blood cell count went way down also.
I am going to see my neurologist tomorrow as he will research this and let me know what we are doing. I LOVE the drug..NO MORE shots...and hope he does NOT take me off the meds

Kim
Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?

Sharon
side effects
Been on Tecfidera for 7 months, thought things were going well, had a relapse 3 months in, extreme vertigo, have always been tired. Relapse went away but I never really felt well. Pressure in chest, redness, flushing, rash, gaseous. Forgot pill one day when I was feeling well, remember around noon and took it with lunch. Within the hour the fatigue, chest pressure, mild dizzy all came back. Have stopped taking it now for 3 days, and the difference on how I feel is like night and day. I have energy, I am able to stay up past 7 o'clock at night, chest pain and tightness is gone. Every day I feel better. Not sure what to do next, I am not going back on it, that much I do know, but I am sure my drs will want me to try something else. May decide to go back on the injections (betaseron) was on that for 8 years, although I really do not like the bruising that comes with the injections.
danny
January 2, 2015
I switched from beta seron to tecfidera in april, like you and thought it was going well then around october started having moments of extreme vertigo and slurring and it has gotten worse. I would like to go back to beta seron but my doc dont seem to want to. I was doing a lot better on it in my opinion. My doc wants to go to tysabri which is plastered all over the waiting room now. I noticed there use to be Beta Seron literature there, now it is gone and tecfidera and tysabri literature is th

Ratsy70
Just started Techfidera
Started Techfidera August 5, 2014

Aug 5- Had no side effects.
Aug 6- Mild Headache but went away
Aug 7- Had some body aches later in day
Aug 8- Woke up with body aches that hurt throughout the day.
Aug 9- Woke up with no side effects :D :D :D

Overall I'm having a great experience on Techfidera. I never had the lobster red flushing or rashes. I'm very excited to have switched to Techfidera from Copaxone.

Nata
1st day on Tecfidera
Took my first dose@9 a.m & turned beat red, flushing & itching for almost 2 hours. Not terrible but am really sleepy very concerned w/that symptom. Anyone else sleepy?
Lisa
January 28, 2015
I took my first dose this morning . Flushing for an hour nausea and my head feels so foggy is this normal ?
Joe
December 20, 2014
I'm on week two and I have the same lethargy and fatigue described above, so you aren't alone there. Does anyone know if side effects get better or worse with time?
Richie
August 24, 2014
I started taking it in May of '14 & no rash or stomach pain. I am sleepy all the time. I could fall asleep tight now. Not sure it's a side effect but was not like this a year ago. Best of luck! I'm here for you XXXX@aol.XXXcom Richie
August 20, 2014
Hang in there...it gets better...
Crystal
August 10, 2014
Took 2nd dose tonight - Yes, I feel sleepy too. With my first dose this morning - I also turned beet red all over (rash), had some flushing and mild itch. With 2nd dose - My throat feels weird but no flushing and I don't have the rash.

Leslie
Allergic reaction to Tecfidera
I have been on Tecfidera for 7 months for MS. I was so happy not to be doing the injections. I had the flushing and was not having any problems and all of a sudden had a terrible rash over my whole body. I went to the dermatologist put me on steroids and did a skin test. She thought it was an allergic reaction to my medicine. Called neuro and nurse said to go off for a week. My rash just started to go away. Started bac on this morning, within 2 hours was covered in a bright red color, started to itch and was so hot to the touch. I am afraid to stay on it. I called the drug company and they said they never had anyone with a bad rash. I find it hard to believe no one else has reported this. Did anyone else have this happen? This is much more than flushing. Is there any other med for MS that is in pill form? I was hoping this wasn't the Tecfidera, I thought after 6 months of being on it, I was home free.
jfcincy
December 29, 2014
Several months after taking the drug I got a rash and several hours later had plaque hives then swelling lips and tongue. Went to ER in anaphylactic shock. Went off drug and two days later it happened again. One doctor thought that by suppressing my immune system an already existing autoimmune skin disorder emerged. I'm back on the drug, but I have to take Singulair, Benadryl, and loratadine to stay on it. With the new warnings about anaphylaxis and angioedema, I don't know what to do.
Flushed
December 2, 2014
Yes, I have been on Tecfidera for about a year and a half and I too experience the flushing and rash. It is very annoying and I am considering stopping it. I reported my symptoms to my neuro and he reported it to the drug company along with pictures of the rash. Supposedly no one else has experienced the rash. Obviously, that is not true.
Cathy Gear
November 30, 2014
I started Tecfidera July 2014 and had terrible nausea. I spoke to the pharmacist at the drug company and was told to try Nauzeen, a "natural" anti nausea medicine. Three days later I was covered in a rash, including swollen lips. Called the drug company again and was also told they had never heard of an allergic reaction. Went off the meds for a week, got a steroid shot and a round of steroids. The best anybody could come up with is I must have been allergic to the dyes or fillers in the anti n
November 12, 2014
I have started getting daily allergic reaction type rashes. Don't seem to get them (at least not as bad) if I take allergy medicine too. Mine tend to last about an hour & then go away. but it is hot, red, itchy...awful when it happens.
msfireant
October 25, 2014
restarted Tecfidera after a week since my last dose. A few hours after taking first dose, I was completely red all over. Changed clothes into something more loose and sat under a fan. My second dose, a few hours later, I could feel it again and started watching myself turn red again. Drank ice water, and used moist towel to cool my skin. Redness reduced within an hour. Never had it happen when I started it, but maybe being off for a week and then restarting at the full dose was too much
August 17, 2014
Try taking a low dose aspirin a half hour before each dose, and take it on a full stomach, with peanut butter, or some other healthy fat. It helps with absorption, and prevents flushing. If it continues, try taking Zyrtec once a day. It may just be that Tec isn't for you, in which case, there are other pills, such as Gilenya and Aubagio. But, Tec has less side effects, so I would try to see if the rash will go away, first.
Unsure
August 11, 2014
I had a rash with red spots on my right leg. I was taking Tecfidera and amoxicllin. My doctor thinks its impetigo, but there is no discharge. I remember I was on medication once and had the same kind of reaction. Not sure if this helps, but thought I would mention it anyway. No flushing but rash on one leg with mild itching. Was told if its get worse to go to dermatology. I have finished the amoxicillin and rash is disappearing.

Patient concerns with Tecfidera (BG-12)

We found 6,136 discussions
KookyKathy
Meds
Is Tecfidera the dames as retuxion?

glenda
tecfidera
Been on tecfidera for 1 year. Have experienced the flushing but rarely happens now. I have lost some weight but am working to get it back. My biggest concern is my low white blood count. Haven't had my mri yet but am anxious for the results.

MJ
weight gain
I have been on tecfidera for 3 weeks and have gained 7 pounds. Is this normal?

Julie
Tecfidera and anaphylaxis, angioedema and rashes
I had all three new symptoms on the patient information sheet. Because I experienced these problems before the new prescribing warnings were added, I stayed on the drug. I don't know if Tecfidera was the cause, but it was Singulair that finally reduced the skin issues, and especially the angioedema (not fun!).

Kim
Low White Blood Count on Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?
Maria
January 26, 2015
I have been on Tecfidera for 8 months now. My white blood cells went to .6. My neurologist suggested I stop taking the pills for 3 weeks, which I did, and my white cells went up again. Now I have been on Tecfidera for two weeks. After the next blood test I will know, what's the situation with my white blood. If the lymphocytes are down again, I will stop the pills.
I have also been very depressed and unpatient...
January 15, 2015
My wife has been told to stop taking Tecfidera due to low white count (around .6, I believe). Aubagio is next, once her white count stabilizes.
susan
January 2, 2015
Would love to hear from someone who was on Rebif and who then went on tecfidera.
Susan
January 2, 2015
I have been on tecfidera for 7 months, and just remembering to take these pills each day is a problem. I never not take them, but if I had to be sure to take them at a certain time during the day I would be in big trouble. I take it in the morning sometime between 9 and 11 and then I take it at night, some time between 6 and 8. This concerns me because I know you should be taking it at the same time each day. I don't know how this affects the benefits of this drug. I was taking Rebif and I
Jim
January 1, 2015
Me too. I had been on it 17 months. Went .8, .7, .64, .59 at which point I quit it. I will go back on copaxone after lymphocytes (hopefully) rebound.

Was doing well on Tecfidera but not worth the risk.
Andy
December 16, 2014
Yes, I have...I have been on it for 4 mos andand my white blood cell count went way down also.
I am going to see my neurologist tomorrow as he will research this and let me know what we are doing. I LOVE the drug..NO MORE shots...and hope he does NOT take me off the meds

Kim
Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?

Sharon
side effects
Been on Tecfidera for 7 months, thought things were going well, had a relapse 3 months in, extreme vertigo, have always been tired. Relapse went away but I never really felt well. Pressure in chest, redness, flushing, rash, gaseous. Forgot pill one day when I was feeling well, remember around noon and took it with lunch. Within the hour the fatigue, chest pressure, mild dizzy all came back. Have stopped taking it now for 3 days, and the difference on how I feel is like night and day. I have energy, I am able to stay up past 7 o'clock at night, chest pain and tightness is gone. Every day I feel better. Not sure what to do next, I am not going back on it, that much I do know, but I am sure my drs will want me to try something else. May decide to go back on the injections (betaseron) was on that for 8 years, although I really do not like the bruising that comes with the injections.
danny
January 2, 2015
I switched from beta seron to tecfidera in april, like you and thought it was going well then around october started having moments of extreme vertigo and slurring and it has gotten worse. I would like to go back to beta seron but my doc dont seem to want to. I was doing a lot better on it in my opinion. My doc wants to go to tysabri which is plastered all over the waiting room now. I noticed there use to be Beta Seron literature there, now it is gone and tecfidera and tysabri literature is th

Ratsy70
Just started Techfidera
Started Techfidera August 5, 2014

Aug 5- Had no side effects.
Aug 6- Mild Headache but went away
Aug 7- Had some body aches later in day
Aug 8- Woke up with body aches that hurt throughout the day.
Aug 9- Woke up with no side effects :D :D :D

Overall I'm having a great experience on Techfidera. I never had the lobster red flushing or rashes. I'm very excited to have switched to Techfidera from Copaxone.

Nata
1st day on Tecfidera
Took my first dose@9 a.m & turned beat red, flushing & itching for almost 2 hours. Not terrible but am really sleepy very concerned w/that symptom. Anyone else sleepy?
Lisa
January 28, 2015
I took my first dose this morning . Flushing for an hour nausea and my head feels so foggy is this normal ?
Joe
December 20, 2014
I'm on week two and I have the same lethargy and fatigue described above, so you aren't alone there. Does anyone know if side effects get better or worse with time?
Richie
August 24, 2014
I started taking it in May of '14 & no rash or stomach pain. I am sleepy all the time. I could fall asleep tight now. Not sure it's a side effect but was not like this a year ago. Best of luck! I'm here for you XXXX@aol.XXXcom Richie
August 20, 2014
Hang in there...it gets better...
Crystal
August 10, 2014
Took 2nd dose tonight - Yes, I feel sleepy too. With my first dose this morning - I also turned beet red all over (rash), had some flushing and mild itch. With 2nd dose - My throat feels weird but no flushing and I don't have the rash.

Leslie
Allergic reaction to Tecfidera
I have been on Tecfidera for 7 months for MS. I was so happy not to be doing the injections. I had the flushing and was not having any problems and all of a sudden had a terrible rash over my whole body. I went to the dermatologist put me on steroids and did a skin test. She thought it was an allergic reaction to my medicine. Called neuro and nurse said to go off for a week. My rash just started to go away. Started bac on this morning, within 2 hours was covered in a bright red color, started to itch and was so hot to the touch. I am afraid to stay on it. I called the drug company and they said they never had anyone with a bad rash. I find it hard to believe no one else has reported this. Did anyone else have this happen? This is much more than flushing. Is there any other med for MS that is in pill form? I was hoping this wasn't the Tecfidera, I thought after 6 months of being on it, I was home free.
jfcincy
December 29, 2014
Several months after taking the drug I got a rash and several hours later had plaque hives then swelling lips and tongue. Went to ER in anaphylactic shock. Went off drug and two days later it happened again. One doctor thought that by suppressing my immune system an already existing autoimmune skin disorder emerged. I'm back on the drug, but I have to take Singulair, Benadryl, and loratadine to stay on it. With the new warnings about anaphylaxis and angioedema, I don't know what to do.
Flushed
December 2, 2014
Yes, I have been on Tecfidera for about a year and a half and I too experience the flushing and rash. It is very annoying and I am considering stopping it. I reported my symptoms to my neuro and he reported it to the drug company along with pictures of the rash. Supposedly no one else has experienced the rash. Obviously, that is not true.
Cathy Gear
November 30, 2014
I started Tecfidera July 2014 and had terrible nausea. I spoke to the pharmacist at the drug company and was told to try Nauzeen, a "natural" anti nausea medicine. Three days later I was covered in a rash, including swollen lips. Called the drug company again and was also told they had never heard of an allergic reaction. Went off the meds for a week, got a steroid shot and a round of steroids. The best anybody could come up with is I must have been allergic to the dyes or fillers in the anti n
November 12, 2014
I have started getting daily allergic reaction type rashes. Don't seem to get them (at least not as bad) if I take allergy medicine too. Mine tend to last about an hour & then go away. but it is hot, red, itchy...awful when it happens.
msfireant
October 25, 2014
restarted Tecfidera after a week since my last dose. A few hours after taking first dose, I was completely red all over. Changed clothes into something more loose and sat under a fan. My second dose, a few hours later, I could feel it again and started watching myself turn red again. Drank ice water, and used moist towel to cool my skin. Redness reduced within an hour. Never had it happen when I started it, but maybe being off for a week and then restarting at the full dose was too much
August 17, 2014
Try taking a low dose aspirin a half hour before each dose, and take it on a full stomach, with peanut butter, or some other healthy fat. It helps with absorption, and prevents flushing. If it continues, try taking Zyrtec once a day. It may just be that Tec isn't for you, in which case, there are other pills, such as Gilenya and Aubagio. But, Tec has less side effects, so I would try to see if the rash will go away, first.
Unsure
August 11, 2014
I had a rash with red spots on my right leg. I was taking Tecfidera and amoxicllin. My doctor thinks its impetigo, but there is no discharge. I remember I was on medication once and had the same kind of reaction. Not sure if this helps, but thought I would mention it anyway. No flushing but rash on one leg with mild itching. Was told if its get worse to go to dermatology. I have finished the amoxicillin and rash is disappearing.

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