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Treato results for Tecfidera (BG-12) and Vitamin D

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Help people by sharing experiences you've had with Tecfidera (BG-12) or Vitamin D - your story could impact others.
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By glenda
January 5, 2015
glenda wrote
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January 4, 2015
MJ wrote
weight gain
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By Julie
December 29, 2014
Julie wrote
Tecfidera and anaphylaxis, angioedema and rashes
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By Kim
December 15, 2014
Kim wrote
Low White Blood Count on Tecfidera
I have been on Tecfidera for 8 months now. My white blood cells went to .6. My neurologist suggested I stop taking the pills for 3 weeks, which I did, and my white cells went up again. Now I have been on Tecfidera for two weeks. After the next blood test I will know, what's the situation with my white blood. If the lymphocytes are down again, I will stop the pills.
I have also been very depressed and unpatient...
Maria  |  January 26, 2015
My wife has been told to stop taking Tecfidera due to low white count (around .6, I believe). Aubagio is next, once her white count stabilizes.
January 15, 2015
Would love to hear from someone who was on Rebif and who then went on tecfidera.
susan  |  January 2, 2015
I have been on tecfidera for 7 months, and just remembering to take these pills each day is a problem. I never not take them, but if I had to be sure to take them at a certain time during the day I would be in big trouble. I take it in the morning sometime between 9 and 11 and then I take it at night, some time between 6 and 8. This concerns me because I know you should be taking it at the same time each day. I don't know how this affects the benefits of this drug. I was taking Rebif and I
Susan  |  January 2, 2015
Me too. I had been on it 17 months. Went .8, .7, .64, .59 at which point I quit it. I will go back on copaxone after lymphocytes (hopefully) rebound.

Was doing well on Tecfidera but not worth the risk.
Jim  |  January 1, 2015
Yes, I have...I have been on it for 4 mos andand my white blood cell count went way down also.
I am going to see my neurologist tomorrow as he will research this and let me know what we are doing. I LOVE the drug..NO MORE shots...and hope he does NOT take me off the meds
Andy  |  December 16, 2014
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By Kim
December 15, 2014
Kim wrote
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By Sharon
November 25, 2014
Sharon wrote
side effects
I switched from beta seron to tecfidera in april, like you and thought it was going well then around october started having moments of extreme vertigo and slurring and it has gotten worse. I would like to go back to beta seron but my doc dont seem to want to. I was doing a lot better on it in my opinion. My doc wants to go to tysabri which is plastered all over the waiting room now. I noticed there use to be Beta Seron literature there, now it is gone and tecfidera and tysabri literature is th
danny  |  January 2, 2015
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By Ratsy70
August 9, 2014
Ratsy70 wrote
Just started Techfidera
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By Nata
August 2, 2014
Nata wrote
1st day on Tecfidera
I took my first dose this morning . Flushing for an hour nausea and my head feels so foggy is this normal ?
Lisa  |  January 28, 2015
I'm on week two and I have the same lethargy and fatigue described above, so you aren't alone there. Does anyone know if side effects get better or worse with time?
Joe  |  December 20, 2014
I started taking it in May of '14 & no rash or stomach pain. I am sleepy all the time. I could fall asleep tight now. Not sure it's a side effect but was not like this a year ago. Best of luck! I'm here for you XXXX@aol.XXXcom Richie
Richie  |  August 24, 2014
Hang in there...it gets better...
August 20, 2014
Took 2nd dose tonight - Yes, I feel sleepy too. With my first dose this morning - I also turned beet red all over (rash), had some flushing and mild itch. With 2nd dose - My throat feels weird but no flushing and I don't have the rash.
Crystal  |  August 10, 2014
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By Leslie
July 24, 2014
Leslie wrote
Allergic reaction to Tecfidera
Several months after taking the drug I got a rash and several hours later had plaque hives then swelling lips and tongue. Went to ER in anaphylactic shock. Went off drug and two days later it happened again. One doctor thought that by suppressing my immune system an already existing autoimmune skin disorder emerged. I'm back on the drug, but I have to take Singulair, Benadryl, and loratadine to stay on it. With the new warnings about anaphylaxis and angioedema, I don't know what to do.
jfcincy  |  December 29, 2014
Yes, I have been on Tecfidera for about a year and a half and I too experience the flushing and rash. It is very annoying and I am considering stopping it. I reported my symptoms to my neuro and he reported it to the drug company along with pictures of the rash. Supposedly no one else has experienced the rash. Obviously, that is not true.
Flushed  |  December 2, 2014
I started Tecfidera July 2014 and had terrible nausea. I spoke to the pharmacist at the drug company and was told to try Nauzeen, a "natural" anti nausea medicine. Three days later I was covered in a rash, including swollen lips. Called the drug company again and was also told they had never heard of an allergic reaction. Went off the meds for a week, got a steroid shot and a round of steroids. The best anybody could come up with is I must have been allergic to the dyes or fillers in the anti n
Cathy Gear  |  November 30, 2014
I have started getting daily allergic reaction type rashes. Don't seem to get them (at least not as bad) if I take allergy medicine too. Mine tend to last about an hour & then go away. but it is hot, red, itchy...awful when it happens.
November 12, 2014
restarted Tecfidera after a week since my last dose. A few hours after taking first dose, I was completely red all over. Changed clothes into something more loose and sat under a fan. My second dose, a few hours later, I could feel it again and started watching myself turn red again. Drank ice water, and used moist towel to cool my skin. Redness reduced within an hour. Never had it happen when I started it, but maybe being off for a week and then restarting at the full dose was too much
msfireant  |  October 25, 2014
Try taking a low dose aspirin a half hour before each dose, and take it on a full stomach, with peanut butter, or some other healthy fat. It helps with absorption, and prevents flushing. If it continues, try taking Zyrtec once a day. It may just be that Tec isn't for you, in which case, there are other pills, such as Gilenya and Aubagio. But, Tec has less side effects, so I would try to see if the rash will go away, first.
August 17, 2014
I had a rash with red spots on my right leg. I was taking Tecfidera and amoxicllin. My doctor thinks its impetigo, but there is no discharge. I remember I was on medication once and had the same kind of reaction. Not sure if this helps, but thought I would mention it anyway. No flushing but rash on one leg with mild itching. Was told if its get worse to go to dermatology. I have finished the amoxicillin and rash is disappearing.
Unsure  |  August 11, 2014
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By 2
June 11, 2014
2 wrote
My first week
Yikes! Hair loss?!
Nata  |  August 2, 2014
One of the things that can be problematic is taking the Tecfidera while on an antibiotic. Tecfidera is an Immune suppressant So the antibiotics and and Tecfidera don't work together. Tecfidera slows down the immune system and antibiotics speed it up.
Ginger  |  July 18, 2014
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By Verna
May 3, 2014
Verna wrote
Tecfidera and weight loss
I was 249# now im 192# None of the doctors seemed to be concerned about this weight loss. I actually like there is finally a somewhat positive side effect from one of these medicines
Brian  |  January 12, 2015
Yes, I have been on it for almost 4 mos and lost 10 lb...but I actually LIKE that side effect.
Andy  |  December 16, 2014
Nice, are now welcoming the comments about its initial decision of the groups of patients, health professionals and others. I suggest you to join that discussion about Tecfidera healthauthoreviews.com
elizaissac  |  September 22, 2014
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By adela
April 23, 2014
adela wrote
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By Myachinghead
January 16, 2014
Myachinghead wrote
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By Martha Jones
December 30, 2013
Martha Jones wrote
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By Vanessa
December 17, 2013
Vanessa wrote
Weight Loss
Loss of appetie almost immeadiatly. After 2.5 weeks, I need to set a timer to remember to eat.
JHS  |  June 25, 2014
I have been on Tec 2 weeks and am experimenting weight gain w/ hunger.
Lilly  |  April 4, 2014
I started on the tec November 2013, and started dropping a little weight consistently until I stopped it just 2 weeks ago. I would have stayed on it but for the other side effects- debilitating nausea, headaches, tooth and gum lesions and pain and hair loss. When I was asked by someone if I had cancer (because of the weight loss) that was enough for me. I should have known better than to consume cleaning products even if they have "reformulated" it and put it in a capsule. I'm getting tir
Cyndie  |  March 29, 2014
Why Tec? I see no weightloss info on it...
Ramprat  |  February 26, 2014
I've been on Tecfidera about four months now and have lost 20 pounds. While I walk miles and miles every day and eat really well, I haven't really changed diet or exercise.
Kristin  |  January 28, 2014
I've been on Tec for over 3 months now. I've lost about 15lbs w/o dieting or much exercise. Going to see the dr soon
SoccerDad  |  January 26, 2014
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By Linda
December 12, 2013
Linda wrote
Feeling the same regarding MS meds. I've been off of Copaxone (injections) for almost 8 years. We just had 2 car accidents and I'm so fearful of more flareups so I began Tecfidera the other day. Yes, the flushing, itchy deal is a nuisance but it's the effect of being tired that I'm having a hard time with. Not at all happy about that! It's bad enough when MS symptoms create a sluggish feeling, now that coupled with this med, stinks.
Nata  |  August 2, 2014
One of the things that can be problematic is taking the Tecfidera while on an antibiotic. Tecfidera is an Immune suppressant So the antibiotics and and Tecfidera don't work together. Tecfidera weakens the immune system and antibiotics strengthen the immune system.

I would highly advise that if you have any kind of infection and are about to start a regime of Tecfidera consult your doctor and do not start until you are infection free.
Ginger  |  July 18, 2014
I have been on Tecifedera for 8 months now and it has been a blessing. I have not had a flareup since on it whereas before it was everyother month. The flushing can be avoided by taking an aspirin with it...it really is a great medication! I recomend switching to it.
Megan  |  May 31, 2014
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By Corrine
December 6, 2013
Corrine wrote
Vitamin D and itchy scalp
T/Sal therapeutic shampoo, by Neutrogena
Lynn Z.  |  September 29, 2014
If I can just help one person with this, after what I have been through with hashimotos and menopause. I saw a Dermoptera 3 times, he and GPs just gave lotions when I wanted a solution. Well I had read a lot about Mane n Tail shampoo, yes it is a horse shampoo, but people have been using it for years and it is wonderful. It removes dirt and oil from the scalp like nothing else will, but salons are not going to tell you this. After 2 years with crazy, itchy, burning scalp, I am itch free. Dermo'
Diane  |  September 18, 2014
I get out in the sun everyday before 11 am...... get the vitamin D naturally. They say this is the best way to get it..... I know vitamin D3 from the sun has lots of benefits....
Gloria S  |  February 17, 2014
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By Marcia
September 5, 2013
Marcia wrote
Pam I also am experiencing extreme fatigue. I am not sure if it's just my MS or if the drug is making it worse. I feel like my arms and legs have weights attached to them.
Ann  |  March 11, 2014
I recently switched from Copaxone, after 10 years. I had no injection sites left. I have been on Tecfidera about 7 months. My recent MRI scans is stable. I still flush, intermittently, several hours after meals. Benadryl handles it well. The major side effect that I have is extreme fatigue. This is different than my normal MS fatigue. I am trying to stick with it to see if after time, it subsides. Hope this helps!
Pam  |  January 6, 2014
Hi Marcia, I do not take Tecfidera but am considering it. I have taken copaxone for over ten yrs. now and have had some flares with optic neuritis, heavy legs with difficulty walking and some fat destruction in my legs where shots are done but Copaxone seems to be working and I feel very stable. I do try to stay out of the sun and to keep my stress as low as possible (read Bible for this every p.m.). I am looking into Tecfidera as I would like to stop taking shots daily. jane
jane  |  September 16, 2013
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By Cheryl Baker
August 22, 2013
Cheryl Baker wrote
I've been on Tecfidera for about 3 months...
I have been taking it for about 3 weeks now and the only side effects I have experience is itching all over and little rash like areas. And for some reason I have been extremely hungry and I don't know if it could be coming from me taking this medicine. Do any one else have an increase of appetite??
Lashun  |  November 26, 2014
I've been on Tecfidera for about a year and after an 8 year remission stretch of Crohn's or Colitus (they couldn't concretely say which one I have) it's BACK!!! Asacol, a treatment for Crohn's, isn't working so now I have ot get off of Tecfidera and will likely go on Azathioprine to get Crohn's under control. This is bad, really bad folks. Azathioprine is very dangerous and it may not help my MS, but the Crohn's is getting so bad I have to let it take precidence over MS. I see online that Tecfi
Tecifidera and Crohn's?  |  September 8, 2014
Trisha, I hope you are still hanging in there. The simplest thing for me made all the difference in the "furnace effect". I read somewhere else that several people took aspirin an hour before Tecfedra. The flushing and heat is so minor now that I do that. I have a lot of hope hanging on this medicine as well. Let's hang on together!
Anne Marie  |  August 25, 2014
It does get better, Trisha. For me it is an every once-in-a-while side effect. It only happens maybe once every 2-3 months.
Cheryl Baker  |  June 10, 2014
I just started low dose 120 mg Tecfedra. I'm just now 3d week getting the sweats.
I'm getting real horrible sweats ( flushing ). I haven't even begun the 240 mg dose &
I'm bout ready to throw in the towel. I'm so misrable. I haven't been able to stay on
anything, this was my really big hope! Does this constant heat go away? Feels like Im
A furnace on the inside. I get dripping wet. Just begun on third week too. I thought this time
I'd make it. Anyone else have this problem ?
Trisha  |  June 10, 2014
I've been on the Tecfidera for a month and now am having unusually heavy cycle that came 2weeks early.
Michelle  |  May 16, 2014
I have been on it for 6 months and have not had those issues.
Pam  |  January 6, 2014
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By Michele
August 5, 2013
Michele wrote
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102 online discussions about Tecfidera (BG-12) and Vitamin D found:

lucky. For me a DMD and lots of Vit D, plus a good diet...
...EDSS of 2.5 to 6.0! My MS Specialist nixed the Tecfidera option and I went immediately on Tysabri. I have ...been lucky....very lucky. For me a DMD and lots of Vit D, plus a good diet a...
worse. Let's see what tecfidera does. I don't remember what...
...eric. Although I just went off the tysabri bc I'm jc positive, ...again if my mri's get worse. Let's see what tecfidera does. I don't remember what my vit d level was but high enough that my neu...
diet and take daily doses of vitamin D. My symptoms have...
...diet and take daily doses of vitamin D. My symptoms have ...get by. I'm hoping to be prescribed a new drug Tecfidera within the next ...tried mine. They offer oxygen treatment for fatigue a...
take fish oil and vitamin D with tecfidera. It seems to...
...take fish oil and vitamin D with tecfidera. I...
for responding...my problem with Vitamin D is it climbs...
Hi Wendy, Thanks for responding...my problem with Vitamin D is it climbs quickly...I ...on drugs...hard decision to go off Avonex after only being on ...state, USA...and the drug BG12 - oral - ...
concerned may develop MS taking Vit D now may slow down (or...
...was the talk about Vitamin D. My take away: they don't fully understand the importance/role of Vitamin D but we all ...develop MS taking Vit D now may ...researchers have found the Vit D leve...
hope that is true along with ldn and vitamin D. Anyway, the...
...an anti-inflammatory diet. She is convinced the Tecfidera is working for me, and I hope that is true along with ldn and vitamin D. Anyway, the reason I'm ...I'm ready for some real vitamin D!...
Tecfidera Today-? Other: Evening Primrose Oil,...
...Diagnosed in 2004 but had first MS symptom in 2000. DMDs: Rebif 2004-2008, Copaxone 2010-2013, Tecfidera Today-? Other: Evening Primrose Oil, Vit D (800), E, Multi, Fish...
The info on vitamin D is particularly interesting, also...
...The info on vitamin D is particularly interesting, also the BG12. Glad you ha...
D Calcium AEP Octacosanol N-aceytl glucosamine N-acetyl...
...Cayenne Saffron Fish oil Vitamin D Calcium AEP Octacosanol N-aceytl ...with \"multiple sclerosis\". Looks to me that you can treat MS the ...will cost so much more as \"BG12\"...
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