Remicade

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Method of use: Injection
Prescribing mode: Rx
Infliximab (International Nonproprietary Name trade name Remicade) is a monoclonal antibody against tumour necrosis factor alph...
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Remicade for Crohn's Disease
109,039 conversations around the web about Remicade to help you make a decision
We analyzed what people said about Remicade and compared it to other Crohn's Disease medications
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What people say about Remicade

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Jessiemont
I've had Crohn's Disease for a long time now and have recently been hospitalized four times within 5 months for severe pain. It took doctors 5 months later to determine that I have Gastroparesis. I didn't know if Remicade can cause this.

Lotus
Has anyone taken Remicade for RA & SLE?
Both my rheumatoid arthritis and systemic lupus is severe. I know Remicade is for RA, as well as other conditions, but I was wondering if anyone RA & SLE has taken this? If so, what type of response did you have?

Babycakes
My Remicaide Infusions
I have only experienced a loss of appetite. It is not severe. Also, for the 1st two dats after infusion, I have a string metal taste in my mouth.

Mel
I believe Remicade killed my dad.
My dad has been treated for a couple years with Remicade treatments for Crohn's disease, Colitis and Ankylosing Spondylosis. He was hospitalized 4 months ago with micro perforations in his colon and A-fibrulation for which the hospital treated his severe sepsis with IV antibiotics, liquid diet and ICU for 6 days plus 4 more in the regular floor. Because he was the worlds worst patient, he was probably pushed along a bit sooner than a normal patient however the GI doc at the hospital (not his normal prescribing Dr) "said it was likely the Remicade was the cause" of the perforations.

Less than 2.5 months later he was feeling extreme pain again however in another location. One other note, my parents were snow birds and his normal doctors were up north and the first hospitalization happened in Florida. The care given to him was top notch though he might have disagreed. Again back to the present, he was feeling extreme pain again though in a completely different location. He refused to go to seek medical care due to the fact he was traveling between his two homes. Sadly, he vomitted blood and that finally scared him to call 911. Thus, the barrage of tests began and 6 hours of Hell in the ER. CT, Xray, UltraSounds, blood tests, etc...he was in so much pain that ultimately he probably couldn't take it anymore and his heart stopped. His death certificate said he died of severe sepsis, spontaneous perforated bowels, cardiac event, kidney failure and more. He was 73 years old.

I am certain he was never informed that Remicade could in fact damage the colon in this way. Most people feel the benefits far outweigh the negative side effects and probably are never given this part of the side effects, as it was hard for me to find on the package insert.

Please be aware of these. I dad died far too young. While he wasn't the healthiest people, he shouldn't have died like this.

MjH
Remicade and protein shakes
Hello, need some help on this. Bec the idea's been worrying me for a while. Ive been taking remicade for the past 3 years bec i was diagnosed with crohns disease. Wanted to know if taking whey protein shakes along with the remicade treatments would affect the kidneys or liver in any way?.
Thanks all

Pollyd
Remecaid and Cymbalta
This combination has reduced some of my pain from Psoriatic Arthritis. I have had no relief from my Psoriasis.

Mickey's mind
UC remicade
I'm 16 year old boy and have had uc for awhile but have been getting infusion of remicade and I was wonder if anyone else is just feeling an overall lack of any kind of energy and have had random mood swings.
July 8, 2015
Usually the first two days after infusion I'm on the couch because I have no energy and just mentally can't function.

Cindy M
Anxiety
Can Remicade increase anxiety levels?

LovesAmerica
Remicade
Can remicade cause carpal tunnel symptoms and sciatica pain. On 9/30/14, I had a remicade infusion for psoriatic arthritis. The next day, I had excruciating pain and numbness in both wrist and all 10 fingers just like to carpal tunnel, which I have never had. I called my doctor, but I was in such pain I could not drive, so he prescribed Tramadol which I just finished taking today with no relief. I have an appt. with him on 10/21/14, then just today, I started having sciatica pain down my left leg which I did have surgery for in 2008.

Can someone please get back to me with an answer.

Thank you

NRamsey
BE CAREFUL WITH VITAMIN D3 - IT STOPS THE EFFECTIVENESS OF REMICADE
If you are on Remicade for arthritis and it stops working (i.e., you start having severe joint pain out of the blue), determine if you have started a new supplement that contains Vitamin D3. If 'yes' - STOP. You'll be better in a week or so. I experimented twice and determined - it's the Vitamin D3. Other things that have the same effect are grapefruit juice and, to a lesser extent, other citrus juices - but the effect is almost immediate with the juices - a few hours, whereas the pain from Vitamin D3 takes a few days to appear once you start the supplement. It is truly debilitating. Note; I have also had negative effects from simply eating grapefruit, oranges, some variety of strawberries and some variety of tomatoes - but not as severe as when drinking juice (because of the concentration).
harry oh
April 30, 2014
hey NRRamsey...have you ckd with your doc about stopping D3...?

Patient concerns with Remicade

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Filter
Filters:
Gender
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We found 109,002 discussions
Jessiemont
I've had Crohn's Disease for a long time now and have recently been hospitalized four times within 5 months for severe pain. It took doctors 5 months later to determine that I have Gastroparesis. I didn't know if Remicade can cause this.

Lotus
Has anyone taken Remicade for RA & SLE?
Both my rheumatoid arthritis and systemic lupus is severe. I know Remicade is for RA, as well as other conditions, but I was wondering if anyone RA & SLE has taken this? If so, what type of response did you have?

Babycakes
My Remicaide Infusions
I have only experienced a loss of appetite. It is not severe. Also, for the 1st two dats after infusion, I have a string metal taste in my mouth.

Mel
I believe Remicade killed my dad.
My dad has been treated for a couple years with Remicade treatments for Crohn's disease, Colitis and Ankylosing Spondylosis. He was hospitalized 4 months ago with micro perforations in his colon and A-fibrulation for which the hospital treated his severe sepsis with IV antibiotics, liquid diet and ICU for 6 days plus 4 more in the regular floor. Because he was the worlds worst patient, he was probably pushed along a bit sooner than a normal patient however the GI doc at the hospital (not his normal prescribing Dr) "said it was likely the Remicade was the cause" of the perforations.

Less than 2.5 months later he was feeling extreme pain again however in another location. One other note, my parents were snow birds and his normal doctors were up north and the first hospitalization happened in Florida. The care given to him was top notch though he might have disagreed. Again back to the present, he was feeling extreme pain again though in a completely different location. He refused to go to seek medical care due to the fact he was traveling between his two homes. Sadly, he vomitted blood and that finally scared him to call 911. Thus, the barrage of tests began and 6 hours of Hell in the ER. CT, Xray, UltraSounds, blood tests, etc...he was in so much pain that ultimately he probably couldn't take it anymore and his heart stopped. His death certificate said he died of severe sepsis, spontaneous perforated bowels, cardiac event, kidney failure and more. He was 73 years old.

I am certain he was never informed that Remicade could in fact damage the colon in this way. Most people feel the benefits far outweigh the negative side effects and probably are never given this part of the side effects, as it was hard for me to find on the package insert.

Please be aware of these. I dad died far too young. While he wasn't the healthiest people, he shouldn't have died like this.

MjH
Remicade and protein shakes
Hello, need some help on this. Bec the idea's been worrying me for a while. Ive been taking remicade for the past 3 years bec i was diagnosed with crohns disease. Wanted to know if taking whey protein shakes along with the remicade treatments would affect the kidneys or liver in any way?.
Thanks all

Pollyd
Remecaid and Cymbalta
This combination has reduced some of my pain from Psoriatic Arthritis. I have had no relief from my Psoriasis.

Mickey's mind
UC remicade
I'm 16 year old boy and have had uc for awhile but have been getting infusion of remicade and I was wonder if anyone else is just feeling an overall lack of any kind of energy and have had random mood swings.
July 8, 2015
Usually the first two days after infusion I'm on the couch because I have no energy and just mentally can't function.

Cindy M
Anxiety
Can Remicade increase anxiety levels?

LovesAmerica
Remicade
Can remicade cause carpal tunnel symptoms and sciatica pain. On 9/30/14, I had a remicade infusion for psoriatic arthritis. The next day, I had excruciating pain and numbness in both wrist and all 10 fingers just like to carpal tunnel, which I have never had. I called my doctor, but I was in such pain I could not drive, so he prescribed Tramadol which I just finished taking today with no relief. I have an appt. with him on 10/21/14, then just today, I started having sciatica pain down my left leg which I did have surgery for in 2008.

Can someone please get back to me with an answer.

Thank you

NRamsey
BE CAREFUL WITH VITAMIN D3 - IT STOPS THE EFFECTIVENESS OF REMICADE
If you are on Remicade for arthritis and it stops working (i.e., you start having severe joint pain out of the blue), determine if you have started a new supplement that contains Vitamin D3. If 'yes' - STOP. You'll be better in a week or so. I experimented twice and determined - it's the Vitamin D3. Other things that have the same effect are grapefruit juice and, to a lesser extent, other citrus juices - but the effect is almost immediate with the juices - a few hours, whereas the pain from Vitamin D3 takes a few days to appear once you start the supplement. It is truly debilitating. Note; I have also had negative effects from simply eating grapefruit, oranges, some variety of strawberries and some variety of tomatoes - but not as severe as when drinking juice (because of the concentration).
harry oh
April 30, 2014
hey NRRamsey...have you ckd with your doc about stopping D3...?

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The side effects featured here are based on those most frequently appearing in user posts on the Internet. The manufacturer's product labeling should always consulted for a list of side effects most frequently appearing in patients during clinical studies. Talk to your doctor about which medications may be most appropriate for you.
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