" ...Gastroenterologist,as I have little faith in my current G.I..I also have a hematolgist that's been treating my hemochromatosis & porphyria c.t. but he admits lack of current knowledge and... "
Ask a question
Ask a question
9,275 conversations around the web about Hemochromatosis to help you make a decision
Hemochromatosis & Porphyria
1.54% of the posts that mention Porphyria also mention Hemochromatosis (75 posts)
We found 75 discussions
" I have / had porphyria PCT which is a lot like hemochromatosis , my porphyria was caused by the hep C but I'm not real sure about the hemo..... Have the doctors mentioned phlebotomy ? It... "
" ...OK... this is a stupid question. I have fragile skin do to my Porphyria and Hemochromatosis. Just the lightest bump of my leg on anything, like a table breaks my skin and it... "
" chronic porphyria i everyone.. i have porphyria plus hemochromatosis.. but i think the 2 ...in hand. i suffer constant nerve pain in my arms ...there, that also has porphyria, and understands w... "
" ...Right-- If this is hemochromatosis, we'll know soon enough, ...haven't had repeated transfusions or porphyria. Quote: The primary treatment for hemochromatosis is phlebotomy, which is... "
" ...with iron overload and the hemochromatosis gene, Porphyria Cutanea Tarda is ...symptoms normally. Some people have more than one type of Porphyria... "
" ...from phlebotomy. Got rid of the tiredness and sleeping ...toxic, and my iron overload didn't show ...susceptable persons. Get hemochromatosis gene checked anytime and also test for porphyri... "
" ...C can either cause porphyria or bring out latent cases.\" I found this info on Canadian porphyria foundation site: http://www.cpf-inc.ca/guide.htm ...topic, because I have hemochromatosis. ... "
" ...was it high? I have heard of hemochromatosis, they do phlebotomies to reduce ...a doctor. I had porphyria PCT which was the ...talked to someone that had hemochromatosis. He basically sa... "
" ...that is a type of porphyria, but personally I have never ...blood drawn. Do people with porphyria have genetic mutations for hemochromatosis? That would seem unlikely... although... "
Your Saved Posts ()
Sign up to keep them
Is this page helpful?