Aubagio is taken for: MS RRMS

Aubagio

1,793
Discussions
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Taken for: MS, RRMS
Method of use: Pill
Prescribing mode: Rx
2.5
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Aubagio for MS
1,793 conversations around the web about Aubagio to help you make a decision
We analyzed what people said about Aubagio and compared it to other MS medications
Share your experience
2.5
Satisfaction score
?

What people say about Aubagio

Positive 113
Negative 150
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KayeS
Aubagio
I'm 6 weeks into Aubagio and really unsure that I want to continue this therapy. The daily headaches and diarrhea is disruptive at times, but now the hair loss has started. I was previously on Avonex, but neuro saw progression on MRI. The hair loss is an effect that really bothers me, MS One to One says the standard 'one growth cycle' but it is enough to make me want to stop Aubagio. It's just discouraging, freaky and frustrating. I am blessed to work for a company that supports NMSS as a preferred charity cause, (Bike MS rocks) but as a Project Manager it's a challenge to explain hair loss to customer and contractors. ??

Kim
Low White Blood Count on Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?
May 19, 2015
I have been on Tecfidera for 18 months and my recent blood tests have shown abnormally low white blood cell counts while on this medication. My neurologist has taken me off of the drug stating it is not worth the risk. Going to repeat my blood work in 3 weeks to see if the wbc has rebounded and then pick another medication. Aside from the flushing and the hair loss I was pleased with the drug. No new lesions after a year of being on treatment. Not sure the drug has had enough clinical tria
Maria
January 26, 2015
I have been on Tecfidera for 8 months now. My white blood cells went to .6. My neurologist suggested I stop taking the pills for 3 weeks, which I did, and my white cells went up again. Now I have been on Tecfidera for two weeks. After the next blood test I will know, what's the situation with my white blood. If the lymphocytes are down again, I will stop the pills.
I have also been very depressed and unpatient...
January 15, 2015
My wife has been told to stop taking Tecfidera due to low white count (around .6, I believe). Aubagio is next, once her white count stabilizes.
susan
January 2, 2015
Would love to hear from someone who was on Rebif and who then went on tecfidera.
Susan
January 2, 2015
I have been on tecfidera for 7 months, and just remembering to take these pills each day is a problem. I never not take them, but if I had to be sure to take them at a certain time during the day I would be in big trouble. I take it in the morning sometime between 9 and 11 and then I take it at night, some time between 6 and 8. This concerns me because I know you should be taking it at the same time each day. I don't know how this affects the benefits of this drug. I was taking Rebif and I
Jim
January 1, 2015
Me too. I had been on it 17 months. Went .8, .7, .64, .59 at which point I quit it. I will go back on copaxone after lymphocytes (hopefully) rebound.

Was doing well on Tecfidera but not worth the risk.
Andy
December 16, 2014
Yes, I have...I have been on it for 4 mos andand my white blood cell count went way down also.
I am going to see my neurologist tomorrow as he will research this and let me know what we are doing. I LOVE the drug..NO MORE shots...and hope he does NOT take me off the meds

Kim
Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?

Post from
www.thisisms.com
Does everyone on this treatment experience hairloss...
" ...I've been recently diagnosed with rrms and the doctors have prescribed me Aubagio. Does everyone on this treatment experience hairloss? I'm a 39 year old male and pretty darn proud to have... "

Post from
www.msworld.org
documents to switch to Aubagio earlier this week which...
" ...MS doc yesterday, and reading between the lines of our conversation, 'Apraxia of gait and trunk movements' is sx of SPMS. I'm currently on Ty, and in fact signed documents to switch to Aubagio... "

Post from
www.msworld.org
stopped Aubagio, I'm still having the hair loss. Do you...
" ...though i've stopped Aubagio, I'm still having the hair loss. Do you think I will need to have that \"flush out\" treatment to get this medicine out of me so the hair loss will stop! So... "

Post from
www.thisisms.com
to all that had been on Aubagio for a longer period of...
" Hello Aubagio people, All of you are ...to all that had been on Aubagio for a longer period of ...it has stabilized your MS? Do you still have relapses? Anything that helps is good news...... "

Post from
www.thisisms.com
5 days I felt like I had a bad dose of flu, also queasiness...
" ...MS Multiple Sclerosis Community: Knowledge & Support I've been taking Aubagio 14mg for 7 days. For the first 5 days I felt like I had a bad dose of flu, also queasiness, this has eased off now.... "

I assume this is good news as Teriflunomide has been...
" Teriflunomide - new oral pill for ...about Teriflunomide, I wondered what everyone's thoughts were? I assume this is good news as Teriflunomide has been used in the USA (under the name Aubagio) f... "

I assume this is good news as Teriflunomide has been...
" Teriflunomide - new oral pill for ...about Teriflunomide, I wondered what everyone's thoughts were? I assume this is good news as Teriflunomide has been used in the US (under the name Aubagio) f... "

Patient concerns with Aubagio

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Filter
Filters:
Gender
Sentiment
Role
Age
All
We found 1,780 discussions
KayeS
Aubagio
I'm 6 weeks into Aubagio and really unsure that I want to continue this therapy. The daily headaches and diarrhea is disruptive at times, but now the hair loss has started. I was previously on Avonex, but neuro saw progression on MRI. The hair loss is an effect that really bothers me, MS One to One says the standard 'one growth cycle' but it is enough to make me want to stop Aubagio. It's just discouraging, freaky and frustrating. I am blessed to work for a company that supports NMSS as a preferred charity cause, (Bike MS rocks) but as a Project Manager it's a challenge to explain hair loss to customer and contractors. ??

Kim
Low White Blood Count on Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?
May 19, 2015
I have been on Tecfidera for 18 months and my recent blood tests have shown abnormally low white blood cell counts while on this medication. My neurologist has taken me off of the drug stating it is not worth the risk. Going to repeat my blood work in 3 weeks to see if the wbc has rebounded and then pick another medication. Aside from the flushing and the hair loss I was pleased with the drug. No new lesions after a year of being on treatment. Not sure the drug has had enough clinical tria
Maria
January 26, 2015
I have been on Tecfidera for 8 months now. My white blood cells went to .6. My neurologist suggested I stop taking the pills for 3 weeks, which I did, and my white cells went up again. Now I have been on Tecfidera for two weeks. After the next blood test I will know, what's the situation with my white blood. If the lymphocytes are down again, I will stop the pills.
I have also been very depressed and unpatient...
January 15, 2015
My wife has been told to stop taking Tecfidera due to low white count (around .6, I believe). Aubagio is next, once her white count stabilizes.
susan
January 2, 2015
Would love to hear from someone who was on Rebif and who then went on tecfidera.
Susan
January 2, 2015
I have been on tecfidera for 7 months, and just remembering to take these pills each day is a problem. I never not take them, but if I had to be sure to take them at a certain time during the day I would be in big trouble. I take it in the morning sometime between 9 and 11 and then I take it at night, some time between 6 and 8. This concerns me because I know you should be taking it at the same time each day. I don't know how this affects the benefits of this drug. I was taking Rebif and I
Jim
January 1, 2015
Me too. I had been on it 17 months. Went .8, .7, .64, .59 at which point I quit it. I will go back on copaxone after lymphocytes (hopefully) rebound.

Was doing well on Tecfidera but not worth the risk.
Andy
December 16, 2014
Yes, I have...I have been on it for 4 mos andand my white blood cell count went way down also.
I am going to see my neurologist tomorrow as he will research this and let me know what we are doing. I LOVE the drug..NO MORE shots...and hope he does NOT take me off the meds

Kim
Tecfidera
I have been on Tecfidera for 13 months. I was very encouraged as the side effects were minimal and I had my first MRI with no new lesions after being on Tecfidera for 7 months. However, I just had a blood test that showed very low white blood cell count. My doctor said normal Lymphocyte is 1 to 4. Mine is .7. He said .5 is too dangerous and would have to come off Tecfidera. I need to take another blood test in 4 weeks to see if I have to come off Tecfidera. Dr. said that there is nothing I can do to raise my white blood count. Has anyone else on Tecfidera experienced this low white blood count?

Post from
www.thisisms.com
Does everyone on this treatment experience hairloss...
" ...I've been recently diagnosed with rrms and the doctors have prescribed me Aubagio. Does everyone on this treatment experience hairloss? I'm a 39 year old male and pretty darn proud to have... "

Post from
www.msworld.org
documents to switch to Aubagio earlier this week which...
" ...MS doc yesterday, and reading between the lines of our conversation, 'Apraxia of gait and trunk movements' is sx of SPMS. I'm currently on Ty, and in fact signed documents to switch to Aubagio... "

Post from
www.msworld.org
stopped Aubagio, I'm still having the hair loss. Do you...
" ...though i've stopped Aubagio, I'm still having the hair loss. Do you think I will need to have that \"flush out\" treatment to get this medicine out of me so the hair loss will stop! So... "

Post from
www.thisisms.com
to all that had been on Aubagio for a longer period of...
" Hello Aubagio people, All of you are ...to all that had been on Aubagio for a longer period of ...it has stabilized your MS? Do you still have relapses? Anything that helps is good news...... "

Post from
www.thisisms.com
5 days I felt like I had a bad dose of flu, also queasiness...
" ...MS Multiple Sclerosis Community: Knowledge & Support I've been taking Aubagio 14mg for 7 days. For the first 5 days I felt like I had a bad dose of flu, also queasiness, this has eased off now.... "

I assume this is good news as Teriflunomide has been...
" Teriflunomide - new oral pill for ...about Teriflunomide, I wondered what everyone's thoughts were? I assume this is good news as Teriflunomide has been used in the USA (under the name Aubagio) f... "

I assume this is good news as Teriflunomide has been...
" Teriflunomide - new oral pill for ...about Teriflunomide, I wondered what everyone's thoughts were? I assume this is good news as Teriflunomide has been used in the US (under the name Aubagio) f... "

Compare Aubagio to other medications

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Rebif
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The side effects featured here are based on those most frequently appearing in user posts on the Internet. The manufacturer's product labeling should always consulted for a list of side effects most frequently appearing in patients during clinical studies. Talk to your doctor about which medications may be most appropriate for you.
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